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[面瘫后愈合不良患者的心理社会问题及应对疾病的方式]

[Psychosocial problems and coping with illness by patients with defective healing after facial paralysis].

作者信息

Kiese-Himmel C, Laskawi R, Wrede S

机构信息

Abteilung Phoniatrie/Pädaudiologie, Universitäts-HNO-Klinik Göttingen.

出版信息

HNO. 1993 May;41(5):261-7.

PMID:8335487
Abstract

Twenty patients with defective healing following idiopathic or infection-induced facial paralysis (group 1) and 14 patients with defective healing after excision of an acoustic neuroma and subsequent hypoglossal-facial nerve anastomosis (group 2) were questioned as to their psychosocial conditions. The principle gueries involved the impact of facial impairment on social activities, behavior in public, professional performance and communication, as well as strategies in coping with disfigurement. One third of the patients (with a majority in group 2) experienced stigmatization and a feeling of embarrassment or anxiety in public. Many patients minimized facial expressions and communication in order to hide their paralyses. In particular, patients in group 2 frequently had to change their employment and had great problems in accepting their conditions. Additional problems had with a clinical diagnosis of "acoustic neuroma" involved greater stress and more pronounced social withdrawal than experienced by the patients with idiopathic pareses.

摘要

对20例特发性或感染性面瘫后愈合不良的患者(第1组)以及14例听神经瘤切除术后行舌下神经 - 面神经吻合术且愈合不良的患者(第2组)进行了心理社会状况调查。主要询问内容包括面部损伤对社交活动、在公共场合的行为、职业表现及交流的影响,以及应对容貌毁损的策略。三分之一的患者(第2组占多数)在公共场合遭受污名化,并有尴尬或焦虑感。许多患者尽量减少面部表情和交流,以掩饰其面瘫。特别是第2组的患者经常不得不更换工作,并且在接受自身状况方面存在很大困难。与特发性面瘫患者相比,“听神经瘤”临床诊断带来的额外问题包括更大的压力和更明显的社交退缩。

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