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[面瘫后愈合不良患者的心理社会问题及应对疾病的方式]

[Psychosocial problems and coping with illness by patients with defective healing after facial paralysis].

作者信息

Kiese-Himmel C, Laskawi R, Wrede S

机构信息

Abteilung Phoniatrie/Pädaudiologie, Universitäts-HNO-Klinik Göttingen.

出版信息

HNO. 1993 May;41(5):261-7.

PMID:8335487
Abstract

Twenty patients with defective healing following idiopathic or infection-induced facial paralysis (group 1) and 14 patients with defective healing after excision of an acoustic neuroma and subsequent hypoglossal-facial nerve anastomosis (group 2) were questioned as to their psychosocial conditions. The principle gueries involved the impact of facial impairment on social activities, behavior in public, professional performance and communication, as well as strategies in coping with disfigurement. One third of the patients (with a majority in group 2) experienced stigmatization and a feeling of embarrassment or anxiety in public. Many patients minimized facial expressions and communication in order to hide their paralyses. In particular, patients in group 2 frequently had to change their employment and had great problems in accepting their conditions. Additional problems had with a clinical diagnosis of "acoustic neuroma" involved greater stress and more pronounced social withdrawal than experienced by the patients with idiopathic pareses.

摘要

对20例特发性或感染性面瘫后愈合不良的患者(第1组)以及14例听神经瘤切除术后行舌下神经 - 面神经吻合术且愈合不良的患者(第2组)进行了心理社会状况调查。主要询问内容包括面部损伤对社交活动、在公共场合的行为、职业表现及交流的影响,以及应对容貌毁损的策略。三分之一的患者(第2组占多数)在公共场合遭受污名化,并有尴尬或焦虑感。许多患者尽量减少面部表情和交流,以掩饰其面瘫。特别是第2组的患者经常不得不更换工作,并且在接受自身状况方面存在很大困难。与特发性面瘫患者相比,“听神经瘤”临床诊断带来的额外问题包括更大的压力和更明显的社交退缩。

相似文献

1
[Psychosocial problems and coping with illness by patients with defective healing after facial paralysis].[面瘫后愈合不良患者的心理社会问题及应对疾病的方式]
HNO. 1993 May;41(5):261-7.
2
Impact of facial paralysis on patients with acoustic neuroma.面瘫对听神经瘤患者的影响。
Laryngoscope. 2000 Sep;110(9):1539-42. doi: 10.1097/00005537-200009000-00024.
3
Global assessment of outcomes after varying reinnervation techniques for patients with facial paralysis subsequent to acoustic neuroma excision.听神经瘤切除术后面瘫患者不同神经再支配技术的疗效综合评估
Otol Neurotol. 2009 Apr;30(3):408-13. doi: 10.1097/MAO.0b013e31819a8e26.
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A qualitative exploration of quality of life among individuals diagnosed with an acoustic neuroma.对被诊断为听神经瘤的个体的生活质量进行的定性探索。
Br J Health Psychol. 2009 Sep;14(Pt 3):563-78. doi: 10.1348/135910708X372527. Epub 2008 Dec 3.
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Delayed facial paralysis after acoustic neuroma surgery: factors influencing recovery.听神经瘤手术后的迟发性面神经麻痹:影响恢复的因素
Am J Otol. 1996 Jul;17(4):630-3.
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Delayed facial palsy after acoustic neuroma resection: the role of viral reactivation.听神经瘤切除术后迟发性面神经麻痹:病毒再激活的作用。
Am J Otol. 1996 Jul;17(4):625-9.
7
Patient perception of comorbid conditions after acoustic neuroma management: survey results from the acoustic neuroma association.听神经瘤治疗后患者对合并症的认知:来自听神经瘤协会的调查结果
Laryngoscope. 2004 May;114(5):814-20. doi: 10.1097/00005537-200405000-00005.
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[I want to smile--a life with facial paralysis].[我想微笑——面瘫患者的生活]
Sykepleien. 1986 Jul 4;73(12):24-8.
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The impact of nasal reconstruction following tumour resection on psychosocial functioning, a clinical-empirical exploration.肿瘤切除术后鼻再造对心理社会功能的影响:一项临床实证探索
Psychooncology. 2009 Jul;18(7):747-52. doi: 10.1002/pon.1459.
10
Distance from acoustic neuroma to fundus and a postoperative facial palsy.听神经瘤到内耳道底的距离与术后面神经麻痹
Laryngoscope. 2002 Jan;112(1):168-71. doi: 10.1097/00005537-200201000-00029.

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Psychological distress in people with disfigurement from facial palsy.面瘫致容貌损毁者的心理困扰。
Eye (Lond). 2011 Oct;25(10):1322-6. doi: 10.1038/eye.2011.158. Epub 2011 Jul 1.