Hollen P J, Hobbie W L
University of Rochester School of Nursing, NY.
Oncol Nurs Forum. 1993 Jun;20(5):769-76.
Late effects of multi-modal treatments for long-term survivors of childhood cancer may affect their ability to make decisions related to risk behaviors. Adolescent survivors may be at greater risk than those in the general population because of late effects of organ compromise and oncogenesis. The purposes of this study were to (1) describe the prevalence of risk behaviors among adolescent long-term survivors of cancer; (2) describe these survivors' perceptions of the quality of their decision making; (3) test the hypothesis that the poorer the decision-making quality, the more risk behaviors exhibited by an adolescent long-term survivor; and (4) examine the effects of central nervous system (CNS) prophylactic leukemia therapy and academic achievement problems on quality of decision making and risk behaviors. In this descriptive study, a semi-structured interview was used at the time of the yearly clinic visit. The sample consisted of 36 long-term survivors who were disease-free for five years, had no medical treatment for two years, and were 14-19 years of age. The major conclusions drawn regarding adolescent long-term survivors were that (1) although there was a trend toward higher experimental use of some risk behaviors, essentially, the prevalence rates were comparable to those of the general population; (2) some were good decision makers; however, quality decision-making skills were poorly practiced by the majority; (3) with better decision-making quality, fewer risk behaviors were exhibited; and (4) prior CNS prophylactic leukemia therapy and academic achievement problems may be associated with poor quality decision making.
儿童癌症长期幸存者多模式治疗的晚期效应可能会影响他们做出与风险行为相关决策的能力。由于器官功能受损和肿瘤发生的晚期效应,青少年幸存者可能比普通人群面临更大的风险。本研究的目的是:(1)描述癌症青少年长期幸存者中风险行为的发生率;(2)描述这些幸存者对其决策质量的认知;(3)检验青少年长期幸存者决策质量越差,表现出的风险行为就越多这一假设;(4)研究中枢神经系统(CNS)预防性白血病治疗和学业成绩问题对决策质量和风险行为的影响。在这项描述性研究中,每年门诊就诊时采用半结构化访谈。样本包括36名长期幸存者,他们已无疾病五年,两年内未接受治疗,年龄在14至19岁之间。关于青少年长期幸存者得出的主要结论是:(1)尽管某些风险行为的尝试性使用率有上升趋势,但基本上,其发生率与普通人群相当;(2)一些人是优秀的决策者;然而,大多数人决策技能的实践情况较差;(3)决策质量越高,表现出的风险行为越少;(4)先前的CNS预防性白血病治疗和学业成绩问题可能与决策质量差有关。