Erdman R A, Horstman L, van Domburg R T, Meeter K, Balk A H
University Hospital Rotterdam-Dijkzigt, Thoraxcentre, The Netherlands.
Qual Life Res. 1993 Jun;2(3):205-12. doi: 10.1007/BF00435224.
The authors investigated 40 heart transplant recipients and their partners to determine both the partner's quality of life upon transplantation and the experiences of both patient and partner with compliance with the medical regimen. Data on sleep disturbances, social isolation, emotional reactions, depression, anxiety, partner's apprehension, social support and compliance (regarding behaviour and emotional experience) were obtained approximately 21 months after transplantation. Compared to related study groups, partners did not experience more problems in sleep, social isolation, emotional reactions, depression and anxiety. Patients overestimated the apprehension of their partners significantly (p < 0.0001). Generally speaking, with the exception of three items relating to eating fish, canned food and forgetfulness in medicine intake, patients and partners agreed with respect to actual compliance behaviour. Lowest compliance concerned regular physical exercise: 28%. Both patient and partner insisted that they had scarcely any emotional problem with the regimen. Further systematic research is needed to bring to light factors that affect compliance as well as adequate methods to bring about an improvement therein.
作者对40名心脏移植受者及其伴侣进行了调查，以确定伴侣在移植后的生活质量以及患者和伴侣在遵守医疗方案方面的经历。在移植后约21个月获得了有关睡眠障碍、社交隔离、情绪反应、抑郁、焦虑、伴侣的担忧、社会支持和依从性（关于行为和情感体验）的数据。与相关研究组相比，伴侣在睡眠、社交隔离、情绪反应、抑郁和焦虑方面没有遇到更多问题。患者显著高估了其伴侣的担忧程度（p < 0.0001）。一般来说，除了与吃鱼、吃罐头食品和忘记服药有关的三个项目外，患者和伴侣在实际依从行为方面意见一致。依从性最低的是定期体育锻炼：28%。患者和伴侣都坚称他们在遵守方案方面几乎没有任何情感问题。需要进一步进行系统研究，以揭示影响依从性的因素以及实现改善的适当方法。
