Williams M H, Bowie C
Health Care Evaluation Unit, University of Bristol.
BMJ. 1993 Jan 9;306(6870):95-8. doi: 10.1136/bmj.306.6870.95.
To identify unmet needs in the care of severely disabled people aged 16-64.
Detailed personal interview and physical assessment of physically disabled adults; personal or telephone interview with carers.
Somerset Health District.
181 severely disabled adults and their carers.
Independence in activities of daily living; identity of requirements for assessing communication disorders; appropriate provision of services and allowances.
53 (29.3%) of the 181 disabled subjects had unmet needs for aids to allow independence in activities of daily living-namely, 43% of subjects (41/95) with progressive disorders and 14% of subjects (12/86) with non-progressive disorders. The prevalence of unmet need was higher among subjects whose sole regular professional contact was with health services personnel (48 (40.3%) of 119 subjects). Only 18 (31.6%) of the 57 subjects with communication disorders had ever been assessed by a speech therapist.
This study shows that the needs of severely physically disabled adults in the community--especially those with progressive disorders--are being monitored inadequately by health professionals.
确定16 - 64岁重度残疾人护理方面未得到满足的需求。
对身体残疾的成年人进行详细的个人访谈和身体评估；对护理人员进行个人或电话访谈。
萨默塞特健康区。
181名重度残疾成年人及其护理人员。
日常生活活动的独立性；评估沟通障碍所需条件的确定；服务和津贴的适当提供。
181名残疾受试者中有53名（29.3%）在获得辅助器具以实现日常生活活动独立方面存在未得到满足的需求，即患有进行性疾病的受试者中有43%（41/95），患有非进行性疾病的受试者中有14%（12/86）。在那些唯一的定期专业接触对象是卫生服务人员的受试者中，未得到满足需求的患病率更高（119名受试者中有48名（40.3%））。57名有沟通障碍的受试者中，只有18名（31.6%）曾接受过言语治疗师的评估。
本研究表明，社区中重度身体残疾成年人的需求，尤其是患有进行性疾病的成年人的需求，未得到卫生专业人员的充分监测。
