Munk-Jørgensen P, Kastrup M, Mortensen P B
Institute of Psychiatric Demography, Aarhus Psychiatric Hospital, Risskov, Denmark.
Acta Psychiatr Scand Suppl. 1993;370:27-32. doi: 10.1111/j.1600-0447.1993.tb05358.x.
The electronic part of the nationwide Danish Psychiatric Central Register is now almost 25 years old. In this period it has proved its high value in administration, planning, treatment of patients, and not least in psychiatric research. Due to its national coverage, the register makes it easy to conduct epidemiological studies, such as analysis of trends, register linkage research, identification of representative cohorts for further analysis and follow-up studies of clinically identified cohorts. After many years of political turmoil, the register now seems to have assumed a more reasonable form, making allowance for both research interest and data protection. A proposed directive on the protection of medical data from the European Community may be a serious threat to the register and will probably eliminate all epidemiological and clinical research based on registers.
丹麦全国精神病学中央登记册的电子部分如今已有近25年历史。在此期间，它在行政管理、规划、患者治疗方面，尤其是在精神病学研究中，已证明具有很高的价值。由于其覆盖全国，该登记册便于开展流行病学研究，如趋势分析、登记册关联研究、确定具有代表性的队列以便进一步分析以及对临床确定的队列进行随访研究。经过多年的政治动荡，该登记册现在似乎已呈现出一种更为合理的形式，兼顾了研究兴趣和数据保护。欧盟委员会一项关于保护医疗数据的拟议指令可能会对该登记册构成严重威胁，并可能使所有基于登记册的流行病学和临床研究不复存在。
