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丹麦医学出生登记处。

The Danish Medical Birth Register.

机构信息

Odense Patient Data Explorative Network (OPEN), Department of Clinical Research, University of Southern Denmark and Odense University Hospital, Odense, Denmark.

Clinical Pharmacology and Pharmacy, Department of Public Health, University of Southern Denmark, Odense, Denmark.

出版信息

Eur J Epidemiol. 2018 Jan;33(1):27-36. doi: 10.1007/s10654-018-0356-1. Epub 2018 Jan 19.

Abstract

The Danish Medical Birth Register was established in 1973. It is a key component of the Danish health information system. The register enables monitoring of the health of pregnant women and their offspring, it provides data for quality assessment of the perinatal care in Denmark, and it is used extensively for research. The register underwent major changes in construction and content in 1997, and new variables have been added during the last 20 years. The aim was to provide an updated description of the register focusing on structure, content, and coverage since 1997. The register includes data on all births in Denmark and comprises primarily of data from the Danish National Patient Registry supplemented with forms on home deliveries and stillbirths. It contains information on maternal age provided by the Civil Registration System. Information on pre-pregnancy body mass index and smoking in first trimester is collected in early pregnancy (first antenatal visit). The individual-level data can be linked to other Danish health registers such as the National Patient Registry and the Danish National Prescription Registry. The register informs several other registers/databases such as the Danish Twin Registry and the Danish Fetal Medicine Database. Aggregated data can be publicly accessed on the Danish Health Data Authority web page ( www.esundhed.dk/sundhedsregistre/MFR ). Researchers can obtain access to individual-level pseudo-anonymised data via servers at Statistics Denmark and the Danish Health Data Authority.

摘要

丹麦医学出生登记系统建立于 1973 年,是丹麦卫生信息系统的重要组成部分。该登记系统用于监测孕妇及其子女的健康状况,为丹麦围产期护理质量评估提供数据,并广泛用于研究。该登记系统在 1997 年进行了重大的结构和内容改革,并在过去 20 年中增加了新的变量。本研究旨在提供自 1997 年以来关于该登记系统结构、内容和覆盖范围的最新描述。该登记系统包含丹麦所有出生的信息,主要由丹麦国家患者登记系统的数据和补充的家庭分娩和死产表格组成,其中包含由民事登记系统提供的产妇年龄信息。孕早期(第一次产前检查)收集关于孕前体重指数和孕早期吸烟的信息。个体水平的数据可以与其他丹麦健康登记系统(如国家患者登记系统和丹麦国家处方登记系统)进行链接。该登记系统通知了其他一些登记系统/数据库,如丹麦双胞胎登记系统和丹麦胎儿医学数据库。汇总数据可在丹麦卫生数据管理局的网页(www.esundhed.dk/sundhedsregistre/MFR)上公开访问。研究人员可通过丹麦统计局和丹麦卫生数据管理局的服务器获取个人水平的伪匿名化数据。

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