Cakiner T, Yüksel A, Soydan M, Saylan T, Bahçeci E
Istanbul Leprosy Hospital, Bakirkoy, Turkey.
Indian J Lepr. 1993 Jan-Mar;65(1):59-67.
Women in Turkey have many social, cultural and economical problems. Women with leprosy have problems in common with other women as well as those related to physical and social consequences of leprosy. There are 2,414 patients with leprosy in Turkey, registered to Istanbul Leprosy Hospital and 829 of them are females. The mean age and duration of disease of our female leprosy patients are high. Most women with leprosy were born in eastern part of Turkey where prevalence of leprosy is higher and most have moved to western regions. The proportion of women who have some kind of social security is very low. Their economic status is also not good and 79% of patients had stigma about their disease. Three fourths of these cases have been hospitalized some time, for different reasons. Most of them (97.2%) have inactive disease at present. Disability degrees of patients are high. Patients with disability degrees over one constitute 54% of total for eyes, 55% for hands and 51% for feet. High percentage of multibacillary form and long duration of disease, delayed diagnosis, insufficient self-care of patients due to low socio-economic and cultural status and failure of health personnel to control patients periodically may be among the reasons for such high ratios of moderate and severe disabilities. In the light of the data obtained in our study, some measures to alleviate the problems of patients resulting from their socio-economic, cultural and social status have been suggested.
土耳其的女性面临诸多社会、文化和经济问题。患麻风病的女性除了面临与麻风病的身体和社会后果相关的问题外,还与其他女性有一些共同问题。土耳其有2414名麻风病患者在伊斯坦布尔麻风病医院登记在册,其中829名是女性。我们的女性麻风病患者的平均年龄和病程较长。大多数患麻风病的女性出生在土耳其东部,那里麻风病患病率较高,且大多数人已迁往西部地区。拥有某种社会保障的女性比例非常低。她们的经济状况也不佳,79%的患者对自己的疾病感到羞耻。其中四分之三的患者曾因不同原因住院。目前,她们中的大多数人(97.2%)病情处于静止期。患者的残疾程度较高。残疾程度超过一级的患者在眼部占总数的54%,手部占55%,足部占51%。多菌型比例高、病程长、诊断延误、由于社会经济和文化地位低导致患者自我护理不足以及卫生人员未能定期对患者进行管控,可能是导致中度和重度残疾比例如此之高的原因。根据我们研究中获得的数据,已提出一些措施来缓解患者因其社会经济、文化和社会地位而产生的问题。