Leikin S
Cancer. 1993 May 15;71(10 Suppl):3342-6. doi: 10.1002/1097-0142(19930515)71:10+<3342::aid-cncr2820711734>3.0.co;2-i.
Because adolescents are codified as incompetents, their health care decision-making authority often is encroached upon. When a teenager develops a serious disease such as cancer, others are even more likely to appropriate decision-making authority than under normal circumstances. Adolescents can contribute to decisions concerning their treatment provided certain guidelines are used. These guidelines stem from bioethical concerns and our understanding of the development in cognitive ability related to decision-making. This article summarizes considerations relating to each of these two areas. Because the clinical stage of the malignancy also affects bioethical concerns, the adolescent's role in decision-making at the time of initial diagnosis and recurrence are discussed.
由于青少年被法律认定为无行为能力人,他们在医疗保健方面的决策权力常常受到侵犯。当青少年患上诸如癌症等严重疾病时,相较于正常情况,其他人更有可能擅自夺取决策权力。只要遵循某些指导原则,青少年就能参与有关自身治疗的决策。这些指导原则源于生物伦理方面的考量以及我们对与决策相关的认知能力发展的理解。本文总结了与这两个领域各自相关的考虑因素。由于恶性肿瘤的临床阶段也会影响生物伦理方面的考量,因此本文还讨论了青少年在初次诊断和复发时的决策角色。