The Degge Group, Ltd, Arlington, Virginia 22209, USA.
Pediatr Blood Cancer. 2010 Sep;55(3):512-9. doi: 10.1002/pbc.22608.
Cancer is the number one disease killer of children and adolescents in North America. For adolescents, this diagnosis comes at a particularly vulnerable stage. Educating adolescents with cancer from diagnosis through treatment teaches and empowers them. Increasing evidence shows that these adolescents want more information. Few educational tools exist for young cancer patients; none are interactive; therefore, a CD-ROM was developed to meet this need.
Animation, voiceover, music, videos, and games were combined to develop a comprehensive multimedia CD-ROM to teach 12- to 18-year-olds with solid tumors about their disease, treatment, coping skills, and late effects in an interactive and non-threatening way. The CD-ROM was evaluated in a pre-post design with 65 subjects recruited from four pediatric oncology centers randomized to the CD-ROM or a "Handbook" containing analogous information. Pre-post questionnaires measured coping strategies, health locus of control, quality of life, cancer knowledge, and self-efficacy; post-test variables also included acceptability and use by teens, their families, and healthcare professionals.
Teens receiving the CD-ROM were significantly more likely to increase their internal locus of control scores; however, no significant differences were observed on other measures, attributable in part to the study sample size. Among teens, acceptability was higher in the CD-ROM versus the Handbook group, but not different between the two parent groups. Pediatric oncology healthcare providers gave positive feedback on the CD-ROM.
This CD-ROM is an innovative and engaging educational tool--the first portable interactive product with access on demand for adolescents with solid tumors.
癌症是北美儿童和青少年的头号疾病杀手。对于青少年来说，这种诊断发生在一个特别脆弱的阶段。对患有癌症的青少年进行从诊断到治疗的教育，可以教导他们并赋予他们力量。越来越多的证据表明，这些青少年想要更多的信息。很少有针对年轻癌症患者的教育工具；没有一个是互动的；因此，开发了一个 CD-ROM 来满足这一需求。
动画、旁白、音乐、视频和游戏被结合在一起，开发了一个全面的多媒体 CD-ROM，以互动和非威胁的方式向 12 至 18 岁患有实体瘤的青少年教授有关他们的疾病、治疗、应对技巧和晚期影响的知识。该 CD-ROM 在四个儿科肿瘤中心招募的 65 名受试者中进行了前后设计评估，这些受试者被随机分为 CD-ROM 组或包含类似信息的“手册”组。前后问卷测量了应对策略、健康控制源、生活质量、癌症知识和自我效能；测试后变量还包括青少年、他们的家人和医疗保健专业人员的可接受性和使用情况。
接受 CD-ROM 的青少年更有可能增加他们的内部控制源评分；然而，在其他方面没有观察到显著差异，部分归因于研究样本量。在青少年中，CD-ROM 组的可接受性高于手册组，但两个家长组之间没有差异。儿科肿瘤学医疗保健提供者对 CD-ROM 给予了积极的反馈。
这个 CD-ROM 是一个创新和吸引人的教育工具——第一个具有按需访问功能的便携式互动产品，适用于患有实体瘤的青少年。
