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停止苯丙酮尿症幼儿的苯丙氨酸限制饮食。社会心理方面。

Discontinuing the phenylalamine-restricted diet in young children with PKY. Psychosocial aspects.

作者信息

Pueschel S M, Yeatman S, Hum C

出版信息

J Am Diet Assoc. 1977 May;70(5):506-9.

PMID:853201
Abstract

Analysis of questionnaires, informal group meetings, and individual interviews with parents and their children with phenylketonuria gave insight on the attitudes and experiences surrounding discontinuance of the phenylalanine-restricted diet. The investigation identified important aspects of changing social interactions as termination of the restricted diet progressed. The study suggests that preparatory discussions with parents and children prior to the change in diet should be held to avoid undue stress and conflict in such families.

摘要

对苯丙酮尿症患儿及其家长的问卷调查、非正式小组会议和个人访谈分析,揭示了围绕停止苯丙氨酸限制饮食的态度和经历。调查发现,随着限制饮食的终止,社交互动变化的重要方面。该研究表明,在饮食改变之前,应与家长和孩子进行准备性讨论,以避免此类家庭出现过度压力和冲突。

相似文献

1
Discontinuing the phenylalamine-restricted diet in young children with PKY. Psychosocial aspects.停止苯丙酮尿症幼儿的苯丙氨酸限制饮食。社会心理方面。
J Am Diet Assoc. 1977 May;70(5):506-9.
2
Termination of restricted diet in children with phenylketonuria: a randomized controlled study.苯丙酮尿症患儿限制饮食的终止:一项随机对照研究。
N Engl J Med. 1975 Nov 27;293(22):1121-4. doi: 10.1056/NEJM197511272932204.
3
Responses of children with phenylketonuria to dietary treatment.
J Am Diet Assoc. 1971 Jan;58(1):32-7.
4
Phenylalanine control and family functioning in early-treated phenylketonuria.早期治疗的苯丙酮尿症中苯丙氨酸的控制与家庭功能
J Dev Behav Pediatr. 1987 Dec;8(6):311-7.
5
Loss of intellectual function in children with phenylketonuria after relaxation of dietary phenylalanine restriction.苯丙酮尿症患儿放松饮食苯丙氨酸限制后智力功能丧失。
Pediatrics. 1985 Feb;75(2):226-32.
6
Workshop for parents of children with PKU.
J Am Diet Assoc. 1971 Dec;59(6):593-4.
7
Does maternal knowledge and parent education affect blood phenylalanine control in phenylketonuria?母亲的知识水平和家长教育会影响苯丙酮尿症患者的血苯丙氨酸控制情况吗?
J Hum Nutr Diet. 2008 Aug;21(4):351-8. doi: 10.1111/j.1365-277X.2008.00891.x.
8
[Neuropsychological follow-up of children with phenylketonuria treated early].
Pediatr Med Chir. 1992 Jul-Aug;14(4):409-13.
9
Social quotients of children with phenylketonuria before and after discontinuation of dietary therapy.苯丙酮尿症患儿停止饮食治疗前后的社交商数。
Am J Ment Defic. 1986 Jul;91(1):92-4.
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[Treatment with phenylalanine restricted diet--nutritional and metabolic aspects].
Lakartidningen. 1974 Mar 20;71(12):1173-5.

引用本文的文献

1
Long-term follow up of patients with classical phenylketonuria after diet relaxation at 5 years of age. The Paris Study.5岁时放松饮食后经典型苯丙酮尿症患者的长期随访。巴黎研究。
Eur J Pediatr. 1996 Jul;155 Suppl 1:S39-44. doi: 10.1007/pl00014246.
2
Diet discontinuation policies and practices of PKU clinics in the United States.美国苯丙酮尿症诊所的饮食中断政策与实践
Am J Public Health. 1980 May;70(5):498-503. doi: 10.2105/ajph.70.5.498.
3
Diet termination in children with phenylketonuria: a review of psychological assessments used to determine outcome.
苯丙酮尿症患儿的饮食终止:用于确定结果的心理评估综述
J Inherit Metab Dis. 1980;3(4):149-53. doi: 10.1007/BF02312549.