Parker L S
Department of Human Genetics and History and Philosophy of Science, University of Pittsburgh, PA 15261, USA.
Trends Genet. 1995 Dec;11(12):520-3. doi: 10.1016/s0168-9525(00)89164-7.
Research on and treatment of complex diseases raise familiar ethical issues concerning informed consent, privacy, confidentially, insurability, employability and social stigma. Consideration of the family as the unit of study, or point of medical intervention, presents some additional twists to these common ethical concerns. In addition, complex diseases present particular ethical challenges because different social and political incentives accompany placing emphasis on either the genetic or the environmental components of the diseases (e.g. in allocating research funds or ascribing responsibility for illness).
对复杂疾病的研究和治疗引发了一些常见的伦理问题，涉及知情同意、隐私、保密、可保险性、就业能力和社会污名。将家庭视为研究单位或医疗干预点，会给这些常见的伦理问题带来一些额外的变化。此外，复杂疾病还带来了特殊的伦理挑战，因为在强调疾病的遗传或环境因素时（例如在分配研究资金或确定疾病责任时）会伴随不同的社会和政治动机。
