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脊柱裂脊髓脊膜膨出患儿及青少年的脊柱病变水平、分流状态、家庭关系及心理社会适应情况

Spinal lesion level, shunt status, family relationships, and psychosocial adjustment in children and adolescents with spina bifida myelomeningocele.

作者信息

Holmbeck G N, Faier-Routman J

机构信息

Loyola University Chicago, Department of Psychology, Illinois 60626, USA.

出版信息

J Pediatr Psychol. 1995 Dec;20(6):817-32. doi: 10.1093/jpepsy/20.6.817.

Abstract

Investigated whether family functioning and child psychosocial adjustment were associated with spinal lesion level and shunt status in 65 children and adolescents with spina bifida myelomeningocele (age range = 8-16). Mothers of children with higher lesion levels (i.e., thoracic level) reported more attachment to their children, less family conflict, and a greater willingness to grant autonomy to their offspring. Such findings support a "marginality" interpretation of the data, insofar as the least physically impaired children with spina bifida exhibited the greatest family difficulties. Based on maternal report, children with shunts performed more poorly in school and exhibited lower levels of cognitive competence than children without shunts. Findings are discussed in relation to literatures on neuropsychological functioning and psychosocial adjustment in children with spina bifida.

摘要

研究了65名患有脊柱裂脊髓脊膜膨出的儿童和青少年(年龄范围=8-16岁)的家庭功能和儿童心理社会适应情况是否与脊柱病变水平和分流状态相关。病变水平较高(即胸段水平)的儿童的母亲报告称,她们与孩子的依恋关系更强、家庭冲突更少,并且更愿意给予子女自主权。这些发现支持了对数据的“边缘性”解释,因为身体损伤最小的脊柱裂儿童表现出最大的家庭困难。根据母亲的报告,与没有分流的儿童相比,有分流的儿童在学校表现更差,认知能力水平更低。结合有关脊柱裂儿童神经心理功能和心理社会适应的文献对研究结果进行了讨论。

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