以营地为基础的干预措施，旨在提高脊柱裂患者的独立性。
A camp-based intervention targeting independence among individuals with spina bifida.
机构信息
Department of Psychology, Loyola University Chicago, Chicago, IL 60626, USA.
出版信息
J Pediatr Psychol. 2010 Sep;35(8):848-56. doi: 10.1093/jpepsy/jsp125. Epub 2009 Dec 21.
Abstract
OBJECTIVE
To design and evaluate a camp-based intervention, the goal of which was to increase independence among children, adolescents, and adults with spina bifida.
METHODS
An intervention targeting independence was embedded within a typical week long camp experience. The intervention consisted of the following: collaborative (i.e., parent and camper) goal identification, group sessions consisting of psycho-education and cognitive tools, and goal monitoring by camp counselors. Camper and parent report of demographic variables, goal attainment, spina bifida knowledge, and independence were gathered. Interventionist report of adherence to the treatment manual was also collected.
RESULTS
Campers made significant gains in individual goals, management of spina bifida responsibilities, and independence with general spina bifida tasks, with medium effect sizes observed in goal attainment.
CONCLUSIONS
Results indicated that significant progress was made on individually oriented goals from pre- to post-camp. Design issues are discussed.
摘要
目的
设计并评估一种以营地为基础的干预措施，其目标是提高脊柱裂患儿、青少年和成人的独立性。
方法
将针对独立性的干预措施嵌入到典型的为期一周的营地体验中。干预措施包括以下内容：（即父母和营地参与者）共同确定目标、包含心理教育和认知工具的小组会议，以及营地辅导员对目标的监测。收集了营地参与者和其父母的人口统计学变量、目标达成、脊柱裂知识和独立性报告。还收集了干预者对治疗手册的依从性报告。
结果
营地参与者在个人目标、脊柱裂责任管理和一般脊柱裂任务的独立性方面取得了显著进展，在目标达成方面观察到中等效应量。
结论
结果表明，从入营前到入营后，个人定向目标取得了显著进展。讨论了设计问题。
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