Van Dongen-Melman J E, De Groot A, Hählen K, Verhulst F C
Department of Child and Adolescent Psychiatry, Eramus University, Rotterdam, Netherlands.
Eur J Cancer. 1995 Dec;31A(13-14):2277-83. doi: 10.1016/0959-8049(95)00475-0.
Siblings of childhood cancer patients are labelled the "forgotten children" because they experience significant psychosocial distress and are isolated from support systems inside and outside the family. This study investigates the late consequences of the cancer experience for siblings. 60 siblings of cancer survivors were compared with control subjects on measures of psychosocial adjustment. No differences were found between siblings of cancer survivors and controls on emotional and behavioural problems and competence, suggesting that siblings adjust well to the period after cessation of treatment. The effect of demographic, family and disease-related characteristics on the siblings' psychosocial adjustment was limited. Whereas during treatment many psychosocial problems for siblings have been reported, this does not result in a heightened risk of psychological disturbance for siblings as a late effect. The implications for patient care are discussed.
儿童癌症患者的兄弟姐妹被贴上了“被遗忘的孩子”的标签，因为他们经历了巨大的心理社会困扰，并且与家庭内外的支持系统隔绝。本研究调查了癌症经历对这些兄弟姐妹的长期影响。将60名癌症幸存者的兄弟姐妹与对照组在心理社会适应指标上进行了比较。癌症幸存者的兄弟姐妹与对照组在情绪和行为问题及能力方面未发现差异，这表明兄弟姐妹能很好地适应治疗结束后的时期。人口统计学、家庭和疾病相关特征对兄弟姐妹心理社会适应的影响有限。虽然在治疗期间报告了兄弟姐妹存在许多心理社会问题，但这并不会导致他们后期出现心理障碍的风险增加。文中讨论了对患者护理的启示。
