Van Dongen-Melman J E
Department of Pediatrics, Sophia Children's Hospital/University Hospital Rotterdam, Erasmus University Rotterdam, The Netherlands.
Leukemia. 1997 Nov;11(11):1799-806. doi: 10.1038/sj.leu.2400830.
With increasing survival rates in pediatric oncology, the medical and psychosocial costs of cure are becoming apparent for the child and his family. The focus of our concern is now how to prevent and to reduce these adverse late effects of cancer and its treatment. To reduce the late psychosocial consequences for the child and its family a booklet was written for parents. We decided to address parents because of the young age of many children when treatment is completed, the essential role of parents in alleviating late effects for the child and his siblings, and the possibility to discuss the whole range of psychosocial late effects: those for the patient, the siblings, and for the parents themselves. The booklet acknowledges the specific emotional problems in patients, parents, and siblings that results from surviving childhood cancer and provides information and support on how to deal with them. The booklet can enhance open communication with the health care team about late consequences. In this way the booklet supports the further integration of medical and psychosocial aftercare.
随着儿科肿瘤学领域生存率的不断提高，治愈疾病给儿童及其家庭带来的医疗和心理社会成本日益显现。我们现在关注的焦点是如何预防和减少癌症及其治疗带来的这些不良晚期影响。为了减少对儿童及其家庭的晚期心理社会影响，我们为家长编写了一本手册。我们决定面向家长，是因为许多孩子完成治疗时年龄尚小，家长在减轻孩子及其兄弟姐妹的晚期影响方面起着至关重要的作用，而且有机会讨论心理社会晚期影响的各个方面：对患者、兄弟姐妹以及家长自身的影响。该手册认识到儿童癌症幸存者在患者、家长和兄弟姐妹中产生的特定情感问题，并提供有关如何应对这些问题的信息和支持。这本手册可以加强与医疗团队就晚期后果进行的开放沟通。通过这种方式，该手册有助于进一步整合医疗和心理社会后续护理。
