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伦理与危重症婴幼儿的护理。美国儿科学会生物伦理委员会。

Ethics and the care of critically ill infants and children. American Academy of Pediatrics Committee on Bioethics.

出版信息

Pediatrics. 1996 Jul;98(1):149-52.

PMID:8668392
Abstract

The ability to provide life support to ill children who, not long ago, would have died despite medicine's best efforts challenges pediatricians and families to address profound moral questions. Our society has been divided about extending the life of some patients, especially newborns and older infants with severe disabilities. The American Academy of Pediatrics (AAP) supports individualized decision making about life-sustaining medical treatment for all children, regardless of age. These decisions should be jointly made by physicians and parents, unless good reasons require invoking established child protective services to contravene parental authority. At this time, resource allocation (rationing) decisions about which children should receive intensive care resources should be made clear and explicit in public policy, rather than be made at the bedside.

摘要

不久前,即便医学竭尽全力,患病儿童仍会死亡,而如今能够为这些儿童提供生命支持,这促使儿科医生和患儿家庭去面对深刻的道德问题。在延长一些患者的生命问题上,我们的社会存在分歧,尤其是对于患有严重残疾的新生儿和大龄婴儿。美国儿科学会(AAP)支持针对所有儿童,无论年龄大小,就维持生命的医疗治疗做出个性化决策。这些决策应由医生和家长共同做出,除非有充分理由要求援引既定的儿童保护服务来违背家长的权威。此时,关于哪些儿童应获得重症监护资源的资源分配(配给)决策应在公共政策中明确阐明,而不是在床边做出。

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