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[儿童及青少年期25年的肾脏替代治疗——躯体与心理社会康复的成功]

[25 years kidney replacement therapy in childhood and adolescence--success of somatic and psychosocial rehabilitation].

作者信息

Bulla M, Rosenkranz J

机构信息

Pädiatrischen Nephrologie der Kinderklinik der Universität zu Münster.

出版信息

Versicherungsmedizin. 1996 Jun 1;48(3):85-9.

PMID:8737544
Abstract

In the late sixties, renal replacement therapy (RRT) was started in terminal renal insufficient children and adolescents. The high mortality rate and extreme therapeutic difficulties gave doubts to the possibility of longterm survival as well as somatic and psychosocial rehabilitation in these patients. But nowadays due to improvements in medical and technical possibilities of dialysis and kidney transplantation as well as to individually adapted treatment of the metabolic problems 5-years survival rate is more than 90%, body growth and development is in the lower normal range. Successful psychosocial rehabilitation despite RRT has also improved over time. In the beginning only 29% dialysed patients and 51% transplanted children attended school and 65% completed school. A recent analysis of educational status employment rate and social situation in 617 patients between 20 and 35 year of age who started RRT as children in Europe and 276 terminal renal insufficient adolescents in Germany, gave following results: one third went to vocational training, 11-17% attended university. Thereafter 40-65% of all patients were employed. Unemployment was a big problem in dialysed adolescents and young adults. With increasing age the patients gained independence in their life style. About 20% lived in their own houses, 28% were either married, divorced or widowed, 8% had children of their own.

摘要

在六十年代后期,终末期肾功能不全的儿童和青少年开始接受肾脏替代治疗(RRT)。高死亡率和极大的治疗困难让人怀疑这些患者长期存活以及躯体和心理社会康复的可能性。但如今,由于透析和肾脏移植在医学和技术方面的进步,以及对代谢问题的个体化适应性治疗,5年生存率超过90%,身体生长发育处于较低的正常范围。随着时间的推移,尽管接受RRT,心理社会康复也取得了进展。起初,只有29%的透析患者和51%的接受移植的儿童上学,65%完成学业。最近对欧洲617名儿童时期开始接受RRT的20至35岁患者以及德国276名终末期肾功能不全青少年的教育状况、就业率和社会状况进行分析,结果如下:三分之一的人接受职业培训,11%至17%的人上大学。此后,所有患者中有40%至65%就业。失业是透析青少年和年轻成年人面临的一个大问题。随着年龄增长,患者在生活方式上逐渐独立。约20%的人住在自己家里,28%的人已婚、离异或丧偶,8%的人有自己的孩子。

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