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[肾衰竭患儿及其亲属的心理社会管理方面]

[Aspects of psychosocial management of children with kidney failure and their relatives].

作者信息

Reichwald-Klugger E

机构信息

Sektion für pädiatrische Nephrologie, Universitäts-Kinderklinik, Heidelberg.

出版信息

Monatsschr Kinderheilkd. 1993 Apr;141(4):277-84.

PMID:8487787
Abstract

Being confronted with chronic illness in childhood and adolescence implicates a high degree of physical and emotional burden hardly coped with without external support. For this reason psychosocial services to support children with chronic renal failure recently have been initiated at several pediatric nephrology centres during recent years. The spectrum of psychosocial burdens accompanying chronic renal failure in childhood is revealed. Tasks and interventions of psychosocial services corresponding to these burdens are described. The presented data concerning educational and vocational rehabilitation of young renal patients demonstrate the continuous need of qualified psychosocial staff, although the basic equipment of pediatric nephrology with psychosocial services has increased during the last years. In conclusion a concept of integrative patient care is illustrated by giving practical suggestions increasing the patient's compliance.

摘要

儿童和青少年时期面临慢性疾病意味着要承受高度的身体和情感负担,若没有外部支持,这些负担很难应对。因此,近年来几家儿科肾脏病中心已启动心理社会服务项目,以支持患有慢性肾衰竭的儿童。本文揭示了儿童慢性肾衰竭所伴随的一系列心理社会负担,并描述了针对这些负担的心理社会服务任务及干预措施。尽管近年来儿科肾脏病心理社会服务的基本配备有所增加,但文中有关年轻肾病患者教育和职业康复的数据表明,仍持续需要专业的心理社会工作人员。最后,通过给出提高患者依从性的实用建议,阐述了综合患者护理的概念。

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