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《美国残疾人法案》中的伦理假设与模糊之处。

Ethical assumptions and ambiguities in the Americans With Disabilities Act.

作者信息

Kopelman L M

机构信息

Department of Medical Humanities, East Carolina School of Medicine, Greenville, N.C., USA.

出版信息

J Med Philos. 1996 Apr;21(2):187-208. doi: 10.1093/jmp/21.2.187.

Abstract

The Americans With Disabilities Act (ADA) promotes social justice by protecting disabled persons from discrimination and prejudice. It seeks equality of opportunity for them and protects their well being by giving them fair access to goods, services and benefits. These rights are circumscribed in the ADA, however, by constraints of cost, efficiency, utility, and certain social mores. The ADA offers little direction about how to set priorities when these values come into conflict, or about whether equality or opportunity favors equivalent or preferential treatment for disadvantaged people. Until these ambiguities and potential value conflicts are resolved, a central moral and social problem remains unresolved: How can we demonstrate commitment to the rights and welfare of those with severe disabilities while placing fair limits upon their claims? Five special concerns are discussed: (1) eligibility and the allocation of health care; (2) the meaning of 'qualified but disabled' in employing people with mental disabilities; (3) equal opportunity and problems of envy and malingering; (4) ADA accommodation and public protection through testing and licensure; and (5) ADA protection and problems of backlash. Rather than simply wait to see what courts and administrative agencies decide, we should evaluate the moral conflicts, articulate criteria, and help make some difficult choices on morally defensible grounds.

摘要

《美国残疾人法案》(ADA)通过保护残疾人免受歧视和偏见来促进社会正义。它为残疾人寻求机会平等,并通过让他们公平地获得商品、服务和福利来保护他们的福祉。然而,这些权利在《美国残疾人法案》中受到成本、效率、效用和某些社会习俗的限制。当这些价值观发生冲突时,或者当平等或机会有利于对弱势群体进行同等或优惠待遇时,《美国残疾人法案》几乎没有提供关于如何确定优先事项的指导。在这些模糊性和潜在的价值冲突得到解决之前,一个核心的道德和社会问题仍未得到解决:我们如何在对重度残疾人的权利和福利做出承诺的同时,对他们的诉求设定合理的限制?文中讨论了五个特别关注的问题:(1)资格认定与医疗保健分配;(2)在雇佣精神残疾者时“合格但残疾”的含义;(3)平等机会与嫉妒和装病问题;(4)《美国残疾人法案》的便利措施与通过测试和许可进行的公共保护;(5)《美国残疾人法案》的保护与反弹问题。我们不应只是坐等法院和行政机构做出决定,而应评估道德冲突,阐明标准,并基于道德上合理的理由帮助做出一些艰难的选择。

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When do health care decisions discriminate against persons with disabilities?医疗保健决策在何时会歧视残疾人?
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