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疾病中的健康:慢性病患者/残疾人的经历

Health within illness: experiences of chronically ill/disabled people.

作者信息

Lindsey E

机构信息

School of Nursing, University of Victoria, British Columbia, Canada.

出版信息

J Adv Nurs. 1996 Sep;24(3):465-72. doi: 10.1046/j.1365-2648.1996.02135.x.

Abstract

The concept of health within illness is beginning to gain recognition in nursing. However, there has been little research to explore and describe this phenomenon. The results of a recent study investigating the meaning of the experience of feeling healthy for people living with a chronic illness and/or disability are presented. An interpretive phenomenological study was undertaken with eight participants living with a variety of different chronic conditions. The results provide a rich mosaic of themes describing the participants' health experiences. These themes include: (a) honouring the self; (b) seeking and connecting with others; (c) creating opportunities; (d) celebrating life; (e) transcending the self; and (f) acquiring a state of grace. The significance of these results is that they provide for a reconceptualization of health and illness. Such a reconceptualization calls for a transformation in nursing care, from a problem focus and a deficit perspective, to one which focuses on the client's capacity and the promotion of health and healing.

摘要

疾病中的健康概念开始在护理领域获得认可。然而,很少有研究去探索和描述这一现象。本文呈现了最近一项研究的结果,该研究调查了慢性病患者和/或残疾人士对感觉健康体验的意义。对八位患有各种不同慢性病的参与者进行了一项诠释现象学研究。结果呈现出一幅丰富的主题拼图,描述了参与者的健康体验。这些主题包括:(a) 尊重自我;(b) 寻求他人并与之建立联系;(c) 创造机会;(d) 赞美生活;(e) 超越自我;以及 (f) 获得一种优雅的状态。这些结果的意义在于,它们为健康和疾病的重新概念化提供了依据。这种重新概念化要求护理模式从关注问题和缺陷视角,转变为关注患者的能力以及促进健康与康复。

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