Michael S R
J Holist Nurs. 1996 Sep;14(3):251-67. doi: 10.1177/089801019601400307.
Chronic illness is currently the number one health problem facing the United States. Little is known about the experience of making chronic illness a part of one's life, particularly from the perspective of the chronically ill person. The purpose of this phenomenological inquiry was to explore how chronically ill adults integrate chronic illness into their lives. Seventeen chronically ill adults were interviewed by the researcher. Using a modification of Colaizzi's (1978) method of data analysis, 4 major themes emerged. These themes were: confronting loss, fluctuating emotions, making changes, and gaining control of an altered life direction. Some of the major recommendations and implications for nursing practice centered around perceiving the entire experience of chronic illness with an emphasis on the need to recognize and assess loss as an ongoing and unending experience, and how this loss influences a participant's willingness and ability to implement changes required by the medical treatment plan.
慢性病是美国目前面临的头号健康问题。对于将慢性病融入个人生活的体验,人们知之甚少,尤其是从慢性病患者的角度。这项现象学探究的目的是探讨成年慢性病患者如何将慢性病融入他们的生活。研究者对17名成年慢性病患者进行了访谈。通过对科莱齐(1978年)数据分析方法的修改,得出了4个主要主题。这些主题是:面对损失、情绪波动、做出改变以及掌控改变了的生活方向。对护理实践的一些主要建议和启示集中在全面认识慢性病的体验,强调需要认识和评估损失是一种持续不断的经历,以及这种损失如何影响参与者实施医疗治疗计划所需改变的意愿和能力。