Lange A, Haslbeck E, Andus T, Bregenzer N, Gross V, Schölmerich J, Lamparter-Lang R
Innere Medizin I, Klinikum der Universität Regensburg.
Z Gastroenterol. 1996 Jul;34(7):411-5.
Patient education has been accepted widely over the past years as a valid component of disease management in patients with chronic diseases. The aim of our study was to evaluate the effects of patient education in patients with inflammatory bowel disease. Participation in a patient education program should increase the patient's disease-related knowledge and positively influence the patient's quality of life, depression, beliefs of internal control and social activity.
We studied 36 patients with Crohn's disease and ulcerative colitis: 18 were educated in four sessions, 18 were not educated (control-group). The following topics were presented: diagnosis, causes and course of disease; medication and surgery; nutrition and social benefits and stress management and coping with the disease.
The effects of the program were evaluated before, immediately and three months after the intervention using questionnaires. Participants in the program showed a significant increase in knowledge after three months compared with the non-participants. There were positive, although not significant effects on psychosocial variables.
Patient education is a valuable means to increase knowledge of disease and treatment in patient's with Crohn's disease and ulcerative colitis. Effects on psychosocial variables need to be examined on a long term basis in larger patient groups.
在过去几年中，患者教育已被广泛接受为慢性病患者疾病管理的一个有效组成部分。我们研究的目的是评估患者教育对炎症性肠病患者的影响。参与患者教育项目应能增加患者与疾病相关的知识，并对患者的生活质量、抑郁、内控信念和社交活动产生积极影响。
我们研究了36例克罗恩病和溃疡性结肠炎患者：18例接受了四次课程的教育，18例未接受教育（对照组）。介绍了以下主题：疾病的诊断、病因和病程；药物治疗和手术；营养与社会福利以及压力管理和应对疾病。
使用问卷在干预前、干预后立即以及干预后三个月对该项目的效果进行评估。与未参与者相比，参与该项目的患者在三个月后知识有显著增加。对心理社会变量有积极影响，尽管不显著。
患者教育是增加克罗恩病和溃疡性结肠炎患者疾病及治疗知识的一种有价值的手段。对心理社会变量的影响需要在更大的患者群体中进行长期研究。
