Sloper P, Turner S
Department of Public Health and Epidemiology, University of Manchester, England.
J Intellect Disabil Res. 1996 Feb;40 ( Pt 1):39-48. doi: 10.1111/j.1365-2788.1996.tb00601.x.
The progress over a 5-year period in the social-independent functioning of 96 older children and teenagers with Down's syndrome was examined. A significant increase in scores on the Self-Sufficiency Index was found, with considerable individual variability. Path analysis was used to trace the factors associated with current levels of self-sufficiency and the degree of change over time. Earlier level of cognitive development was the strongest predictor of progress in self-sufficiency, but family factors were also important, particularly mothers' strategies for coping with child problems and mothers' levels of social support. For a small number of children with the lowest developmental level, family factors were less important as their self-sufficiency was more strongly limited by their severe disability. The results suggest that interventions aimed at changing maternal coping strategies and supplementing social support may benefit the development of social-independent functioning in young people with Down's syndrome.
研究了96名患有唐氏综合征的大龄儿童和青少年在5年期间社会独立功能的进展情况。结果发现，自给自足指数得分显著提高，个体差异较大。采用路径分析来追踪与当前自给自足水平以及随时间变化程度相关的因素。早期认知发展水平是自给自足进展的最强预测因素，但家庭因素也很重要，特别是母亲应对孩子问题的策略以及母亲的社会支持水平。对于少数发育水平最低的儿童，家庭因素不太重要，因为他们的自给自足受到严重残疾的更强限制。结果表明，旨在改变母亲应对策略和补充社会支持的干预措施可能有利于唐氏综合征青少年社会独立功能的发展。
