Casey F A, Sykes D H, Craig B G, Power R, Mulholland H C
Royal Belfast Hospital for Sick Children, Northern Ireland.
J Pediatr Psychol. 1996 Jun;21(3):335-52. doi: 10.1093/jpepsy/21.3.335.
Examined the behavioral adjustment at school age of 26 children with surgically treated complex congenital heart disease compared to that of 26 children who had been diagnosed as having an innocent murmur. The children with complex heart disease were rated by their parents as more withdrawn, having more social problems, and engaging in fewer activities, and by their teachers as more withdrawn. The families of the children with complex heart disease reported experiencing more stress. Two variables, family strain and exercise tolerance, were strong predictors of teacher-rated school adjustment in the children with complex heart disease, with family strain accounting for 33% of the variance, and exercise tolerance 24%. The impact of the child's chronic condition on the family thus seems to be a critical factor in the school adjustment of these children, more so even than the physical limitations imposed on the child by the chronic condition.
研究了26名接受手术治疗的复杂先天性心脏病患儿与26名被诊断为心脏无害性杂音患儿在学龄期的行为调适情况。患有复杂心脏病的患儿被其父母评定为更孤僻、有更多社交问题且参与的活动更少，被其教师评定为更孤僻。患有复杂心脏病患儿的家庭报告称经历了更多压力。家庭压力和运动耐量这两个变量是患有复杂心脏病患儿教师评定的学校调适情况的有力预测因素，家庭压力占方差的33%，运动耐量占24%。因此，儿童慢性病对家庭的影响似乎是这些儿童学校调适的关键因素，甚至比慢性病给儿童带来的身体限制更为重要。
