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面部残疾指数:一种用于面部神经肌肉系统疾病的残疾评估工具的信度和效度

The Facial Disability Index: reliability and validity of a disability assessment instrument for disorders of the facial neuromuscular system.

作者信息

VanSwearingen J M, Brach J S

机构信息

Department of Physical Therapy, School of Health and Rehabilitation Sciences, University of Pittsburgh, PA 15260, USA.

出版信息

Phys Ther. 1996 Dec;76(12):1288-98; discussion 1298-300. doi: 10.1093/ptj/76.12.1288.

Abstract

BACKGROUND AND PURPOSE

Disorders of the facial neuromuscular system can result in marked disfigurement of the face and difficulties in activities of daily living such as eating, drinking, and communicating. No systematic means of measuring the disability associated with facial nerve disorders exists. The purpose of this investigation was to examine the reliability and construct validity of the Facial Disability Index (FDI), a disease-specific, self-report instrument for the assessment of disabilities of patients with facial nerve disorders.

SUBJECTS AND METHODS

The FDI was administered to 46 ambulatory patients of the University of Pittsburgh Medical Center's Facial Nerve Center. The relationship of the FDI subscale and total scores with clinical impairment measures was determined, and a comparison of the use of the FDI and subscales of the more general SF-36 was made.

RESULTS

The FDI subscales produced reliable scores (theta reliability: physical function = .88; social/well-being function = .83). Construct validity of the FDI physical function subscale was demonstrated by a correlation with the clinician's physical examination of facial movement. The FDI social/well-being subscale was associated with the FDI physical function subscale and with a clinical assessment of psychosocial status within a subset of the sample (n = 14). The FDI represented the relationship between impairments, disability, and psychosocial status better than the generic SF-36 did.

CONCLUSION AND DISCUSSION

The FDI subscales produce reliable measurements, with construct validity for measuring patient-focused focused disability of individuals with disorders of the facial motor system.

摘要

背景与目的

面部神经肌肉系统疾病可导致面部明显畸形,以及在进食、饮水和交流等日常生活活动中出现困难。目前不存在用于测量与面神经疾病相关残疾的系统方法。本研究的目的是检验面部残疾指数(FDI)的可靠性和结构效度,FDI是一种针对疾病的、用于评估面神经疾病患者残疾情况的自我报告工具。

对象与方法

对匹兹堡大学医学中心面神经中心的46名门诊患者进行FDI评估。确定FDI分量表和总分与临床损伤测量指标之间的关系,并比较FDI与更通用的SF - 36分量表的使用情况。

结果

FDI分量表产生了可靠的分数(θ信度:身体功能 = 0.88;社会/幸福感功能 = 0.83)。FDI身体功能分量表的结构效度通过与临床医生对面部运动的体格检查之间的相关性得以证明。FDI社会/幸福感分量表与FDI身体功能分量表以及样本子集(n = 14)内的心理社会状态临床评估相关。FDI比通用的SF - 36更能体现损伤、残疾和心理社会状态之间的关系。

结论与讨论

FDI分量表产生可靠的测量结果,具有测量面部运动系统疾病患者以患者为中心的残疾情况的结构效度。

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