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家庭成员对癌症姑息治疗的看法:家庭功能和家庭成员健康的预测因素。

Family members' perceptions of palliative cancer care: predictors of family functioning and family members' health.

作者信息

Kristjanson L J, Sloan J A, Dudgeon D, Adaskin E

机构信息

Faculty of Nursing, University of Manitoba, Winnipeg, Canada.

出版信息

J Palliat Care. 1996 Winter;12(4):10-20.

PMID:9019032
Abstract

We studied family members' care experiences during the palliative care phase as predictors of family members' health and family functioning during the palliative care phase and three months following the death of the patient. Eighty family members of advanced cancer patients participated in the study at time one (T1) (palliative care phase) and 64 family members completed the data collection protocol at time two (T2) (three months bereavement). Data were also obtained from 36 of the patients within one month of their deaths. Fulfillment theory accounted for 31% of the variance in family care satisfaction and Discrepancy theory accounted for 72% of the variance in family care satisfaction. Discrepancy theory predicted family functioning in the bereavement period (r = -0.33, p < 0.05). Patients' quality of life scores were moderately correlated with family members' health during the palliative care phase (r = -0.38, p < 0.05). Family members' scores on the health index (symptom of stress scale) were significantly lower (p < 0.05) than normative scores reported in a study using a healthy population. The strongest predictor of family members' health scores in the bereavement period was their health score at T1 (r = 0.71, p < 0.01). As well, family functioning at T1 was strongly correlated with family functioning at T2.

摘要

我们研究了姑息治疗阶段家庭成员的护理经历,以此作为预测姑息治疗阶段以及患者死亡后三个月内家庭成员健康状况和家庭功能的指标。80名晚期癌症患者的家庭成员在第一时间点(T1,姑息治疗阶段)参与了研究,64名家庭成员在第二时间点(T2,丧亲三个月后)完成了数据收集方案。我们还在36名患者死亡后一个月内获取了他们的数据。满足理论解释了家庭护理满意度中31%的方差变异,差异理论解释了家庭护理满意度中72%的方差变异。差异理论预测了丧亲期间的家庭功能(r = -0.33,p < 0.05)。在姑息治疗阶段,患者的生活质量得分与家庭成员的健康状况呈中度相关(r = -0.38,p < 0.05)。家庭成员在健康指数(压力症状量表)上的得分显著低于(p < 0.05)一项针对健康人群的研究所报告的标准得分。丧亲期间家庭成员健康得分的最强预测因素是他们在T1时的健康得分(r = 0.71,p < 0.01)。此外,T1时的家庭功能与T2时的家庭功能密切相关。

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