Goldschmidt Dorthe, Schmidt Lone, Krasnik Allan, Christensen Ulla, Groenvold Mogens
Department of Palliative Medicine, Bispebjerg Hospital, Bispebjerg Bakke 23, 20D 1, 2400 Copenhagen NV, Denmark.
Support Care Cancer. 2006 Dec;14(12):1232-40. doi: 10.1007/s00520-006-0082-1. Epub 2006 May 16.
Although the number of palliative home-care teams is increasing, knowledge of what patients and principal informal carers expect from a home-care team is sparse. We aimed to elucidate this as well as evaluate a home-care team.
Individual semi-structured interviews with nine patients and six carers before receiving home care and 2-4 weeks after. In total, 26 interviews were conducted. Interviews were analysed with Template Analysis. Peer debriefing was performed.
Patients and carers expected the team members to have specialised knowledge in palliative care and to improve their sense of security being at home. They also expected respite for carers and activities for patients. They evaluated the team positively but missed respite for carers and 24-h on-call service.
Patients and carers found the home-care team essential to their sense of security being at home. Primary health care professionals must receive any necessary training outside patients' homes. Offering respite for carers and 24-h on-call service would be an improvement.
尽管姑息性家庭护理团队的数量在增加，但对于患者及主要非正式照料者对家庭护理团队的期望了解甚少。我们旨在阐明这一点并评估一个家庭护理团队。
对9名患者和6名照料者在接受家庭护理前以及之后2 - 4周进行个人半结构化访谈。共进行了26次访谈。采用模板分析法对访谈进行分析，并进行同行汇报。
患者和照料者期望团队成员具备姑息治疗方面的专业知识，并增强他们在家中的安全感。他们还期望为照料者提供喘息机会，为患者安排活动。他们对团队给予了积极评价，但认为照料者缺乏喘息机会以及24小时随叫随到服务。
患者和照料者发现家庭护理团队对他们在家中的安全感至关重要。初级卫生保健专业人员必须在患者家外接受任何必要的培训。为照料者提供喘息机会和24小时随叫随到服务将会有所改善。
