King G A, Rosenbaum P L, King S M
Thames Valley Children's Centre, McMaster University, Hamilton, Ontario, Canada.
Child Care Health Dev. 1997 Jan;23(1):47-62. doi: 10.1046/j.1365-2214.1997.840840.x.
This article describes the use of a newly-developed measure of parents' perceptions of health care providers' behaviours (Measure of Processes of Care-MPOC) to evaluate the family centredness of children's rehabilitation services. The measure was developed with the participation of more than 1600 parents of children with chronic neurodevelopmental conditions throughout Ontario. It assesses five domains: enabling and partnership; providing general information; providing specific information about the child; coordinated and comprehensive care; and respectful and supportive care. By comparing the perceptions of parents receiving services from three different types of organizations or programmes, we demonstrated that the MPOC can pick up differences between parents in their experiences of caregiving. We also demonstrated that the MPOC is able to detect differences in how parents view the family-centredness of services provided by individual centres. The data indicate that the MPOC has appreciable utility in providing programmes and services with a description of their current level of family-centred service as perceived by parents. The strengths, limitations and potential uses of the measure in other contexts are discussed.
本文介绍了一种新开发的用于衡量父母对医疗服务提供者行为看法的工具(医疗服务过程衡量工具-MPOC),以评估儿童康复服务的家庭中心性。该工具是在安大略省1600多名患有慢性神经发育疾病儿童的父母参与下开发出来的。它评估五个领域:赋能与伙伴关系;提供一般信息;提供有关孩子的具体信息;协调和全面的护理;以及尊重和支持性护理。通过比较从三种不同类型组织或项目接受服务的父母的看法,我们证明MPOC能够找出父母在护理体验方面的差异。我们还证明MPOC能够检测出父母对各个中心提供的以家庭为中心服务看法上的差异。数据表明,MPOC在向项目和服务提供关于父母所感知的当前以家庭为中心服务水平的描述方面具有显著效用。本文还讨论了该衡量工具在其他背景下的优势、局限性和潜在用途。