Browne G, Bramston P
Centre for Health Practice and Research, Faculty of Sciences University of Southern Queensland, Toowoomba, Australia.
Aust N Z J Ment Health Nurs. 1996 Sep;5(3):120-30.
This paper reports on an investigation into quality of life in the families of young people with intellectual disabilities. Quality of life is an emerging area of research in nursing, therefore some of the theoretical issues in definition and measurement of quality of life are discussed. These issues include objective and subjective dimensions, and the neglected issue of the importance of these dimensions. Families with a member with an intellectual disability were found to have lower objective and subjective quality of life scores but were no different from the control group on the importance dimension. This finding implies that they have similar aspirations to other families but are unable to satisfy these aspirations. Implications of the findings of the study for policy makers and service delivery agencies are discussed.
本文报告了一项关于智障青年家庭生活质量的调查。生活质量是护理领域一个新兴的研究领域，因此讨论了生活质量定义和测量中的一些理论问题。这些问题包括客观和主观维度，以及这些维度重要性这一被忽视的问题。研究发现，有智障成员的家庭在客观和主观生活质量得分上较低，但在重要性维度上与对照组没有差异。这一发现意味着他们与其他家庭有相似的愿望，但无法实现这些愿望。文中还讨论了该研究结果对政策制定者和服务提供机构的启示。
