Browne G, Bramston P
Centre for Health Practice and Research, Faculty of Sciences, University of Southern Queensland, Australia.
J Psychiatr Ment Health Nurs. 1998 Oct;5(5):415-21.
This paper reports the results of a study into stress and quality of life in the parents of young people with an intellectual disability. Research in this area often finds that parents suffer stress as a result of having a son or daughter with an intellectual disability. According to Glidden (1993), this has led to the mistaken perception amongst researchers and professionals in the field that these parents are maladjusted. Glidden's work with parents adopting children with an intellectual disability suggest the parenting may be a satisfying experience and suggests a research focus based on outcomes. In this study the participants, including 102 parents of young people with (44) and without (58) an intellectual disability, were mailed a stress questionnaire and quality of life questionnaire. The results of the analysis of these data demonstrate that the families with a member with a disability report significantly greater stress, they also demonstrated that as stress increases the quality of life decreases. Governments need to address this problem if current policies of integrating people with intellectual disabilities into the community are to be successful. This paper also discusses the reasons natural parents of people with disabilities are dissatisfied while adopting parents are not and suggests further research into this important topic.
本文报告了一项关于智障青年父母的压力与生活质量的研究结果。该领域的研究常常发现，父母会因子女患有智障而承受压力。根据格利登（1993年）的研究，这导致该领域的研究人员和专业人士错误地认为这些父母适应不良。格利登对领养智障儿童的父母的研究表明，为人父母可能是一种令人满足的经历，并提出了基于结果的研究重点。在这项研究中，参与者包括102名有（44名）和没有（58名）智障子女的父母，他们收到了一份压力调查问卷和一份生活质量调查问卷。对这些数据的分析结果表明，有残疾成员的家庭报告的压力明显更大，同时也表明随着压力增加，生活质量会下降。如果要使目前将智障人士融入社区的政策取得成功，政府就需要解决这个问题。本文还讨论了残疾人士的亲生父母不满意而领养父母却满意的原因，并建议对这一重要课题进行进一步研究。
