Suddaby E C, Flattery M P, Luna M
Children's National Medical Center, Washington, DC, USA.
J Transpl Coord. 1997 Mar;7(1):36-40. doi: 10.7182/prtr.1.7.1.b6886306727xwh78.
Psychosocial support during the waiting period for pediatric transplant recipients and their families is vital. This study describes the stress levels and coping techniques among parents of children awaiting cardiac transplant. Twenty-six parents of 18 children demonstrated a range of stress with 77% scoring at a moderate stress level. They perceived transplantation neutrally and used a similar number of coping mechanisms as did a normative group of adults. Use of coping mechanisms significantly decreased over the 3-month study period. A moderate correlation between a negative perception of transplantation and parental stress was found. Parents of girls viewed transplant more negatively than did boys' parents. This study provides a beginning for assisting families during the waiting period.
为小儿移植受者及其家庭在等待期提供心理社会支持至关重要。本研究描述了等待心脏移植患儿的父母的压力水平及应对技巧。18名患儿的26位父母表现出不同程度的压力,77%的父母压力水平为中度。他们对移植的看法较为中立,使用的应对机制数量与正常成年人组相似。在为期3个月的研究期间,应对机制的使用显著减少。研究发现,对移植的负面看法与父母压力之间存在中度相关性。女孩的父母比男孩的父母对移植的看法更负面。本研究为在等待期帮助家庭提供了一个开端。