Berner E S, Partridge E E, Baum S K
University of Alabama at Birmingham Office of Educational Development 35294-2041, USA.
J Cancer Educ. 1997 Summer;12(2):121-5. doi: 10.1080/08858199709528466.
This study examined the outcomes of providing a copy of the PDQ Patient Information File (PIF) to cancer patients.
Patients with cervical, endometrial, and ovarian cancers were randomized to two groups: 1) verbal communication only and 2) verbal communication plus PIF. Cancer knowledge and satisfaction with the PIF and the information received were assessed with telephone interviews. Clinical trial registries were reviewed to determine enrollment in clinical trials.
The overall reaction to the PIF was good or excellent for 92% of the patients surveyed, but there was no significant difference between the two groups in their cancer knowledge, enrollment in clinical trials, or satisfaction with the information they received from their physicians. The majority of patients from both groups lacked basic knowledge about their disease, did not use any source of information other than their physicians and/or nurses, and were satisfied with the information they received.
Patients appreciate receiving written cancer information, although it may not increase their cancer knowledge.
本研究调查了向癌症患者提供《医师数据查询患者信息文件》（PIF）副本的效果。
将宫颈癌、子宫内膜癌和卵巢癌患者随机分为两组：1）仅进行口头沟通；2）口头沟通加PIF。通过电话访谈评估癌症知识以及对PIF和所获信息的满意度。查阅临床试验登记处来确定参与临床试验的情况。
在接受调查的患者中，92%对PIF的总体反应为良好或优秀，但两组在癌症知识、参与临床试验情况或对从医生处获得信息的满意度方面无显著差异。两组中的大多数患者缺乏关于其疾病的基本知识，除医生和/或护士外未使用任何信息来源，且对所获信息感到满意。
患者重视收到书面癌症信息，尽管这可能不会增加他们的癌症知识。
