Rutecki G W, Cugino A, Jarjoura D, Kilner J F, Whittier F C
Internal Medicine Program, Northeastern Ohio Universities College of Medicine (NEOUCOM), Canton, Ohio, USA.
Clin Nephrol. 1997 Sep;48(3):173-80.
Decisions which determine the duration and outcome of terminal care should be influenced by patient autonomy. Studies suggest, however, that end-of-life decision-making is more complex than a single principle and that physicians may be responsible for selected aspects of terminal care independent of patient choice. To study how nephrologists' perceptions toward end-of-life issues may affect decision-making, we anonymously surveyed 125 of them. The study employed the straightforward terminology of "hastening death" rather than adopting the ambiguous term "euthanasia" or the narrow term "assisted suicide." Subjective physician profiles demonstrated that nephrologists who are less comfortable with dying patients were significantly less likely to report that they omitted life-prolonging measures (p = 0.02) and more likely to report that they would not initiate measures in order to hasten death even were it legal (p = 0.04). Ninety-eight percent of nephrologists reported omissions in terminal care with patient knowledge and 80% without patient knowledge. In contrast, forty-three percent of the nephrologists said that were it to become legal to initiate measures in order to hasten death, they would "never" do so. The ethical framework utilized for discontinuation of dialysis decisions incorporated medical benefit (cancer as criterion, 48%; multisystem complications, 84%; dementia 79%) and quality of life criteria. Twenty-five percent of nephrologists admitted difficulty with advance directives if the directives clashed with heir beliefs. ESRD end-of-life decision-making in the USA may be altered by the subjective characteristics of nephrologists. In particular, nephrologists' level of discomfort with patient mortality is linked with their reported management of terminal patients.
决定终末期护理时长和结果的决策应受患者自主权影响。然而,研究表明,临终决策比单一原则更为复杂,医生可能在某些终末期护理方面负有责任,而不受患者选择的影响。为研究肾病学家对临终问题的看法如何影响决策,我们对125位肾病学家进行了匿名调查。该研究采用了“加速死亡”这一直接的术语,而非使用模糊的“安乐死”或狭义的“协助自杀”。医生的主观特征表明,对濒死患者感到较不自在的肾病学家报告称他们省略延长生命措施的可能性显著更低(p = 0.02),而报告称即使加速死亡合法也不会采取措施的可能性更高(p = 0.04)。98%的肾病学家报告在患者知晓的情况下省略终末期护理,80%在患者不知情的情况下省略。相比之下,43%的肾病学家表示如果加速死亡合法化,他们“永远”不会这样做。用于停止透析决策的伦理框架纳入了医疗益处(以癌症为标准,48%;多系统并发症,84%;痴呆,79%)和生活质量标准。25%的肾病学家承认如果预先指示与他们的信念冲突,他们在执行预先指示时会有困难。美国终末期肾病的临终决策可能会因肾病学家的主观特征而改变。特别是,肾病学家对患者死亡的不适程度与他们报告的对终末期患者的管理有关。