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肾脏病学中的伦理挑战:行动呼吁。

Ethical challenges in nephrology: a call for action.

机构信息

School of Medicine, Deakin University, Geelong Waurn Ponds Campus, Geelong, VIC, Australia.

University of Sydney at Westmead Hospital, Westmead, NSW, Australia.

出版信息

Nat Rev Nephrol. 2020 Oct;16(10):603-613. doi: 10.1038/s41581-020-0295-4. Epub 2020 Jun 25.

DOI:10.1038/s41581-020-0295-4
PMID:32587403
Abstract

The American Society of Nephrology, the European Renal Association-European Dialysis and Transplant Association and the International Society of Nephrology Joint Working Group on Ethical Issues in Nephrology have identified ten broad areas of ethical concern as priority challenges that require collaborative action. Here, we describe these challenges - equity in access to kidney failure care, avoiding futile dialysis, reducing dialysis costs, shared decision-making in kidney failure care, living donor risk evaluation and decision-making, priority setting in kidney disease prevention and care, the ethical implications of genetic kidney diseases, responsible advocacy for kidney health and management of conflicts of interest - with the aim of highlighting the need for ethical analysis of specific issues, as well as for the development of tools and training to support clinicians who treat patients with kidney disease in practising ethically and contributing to ethical policy-making.

摘要

美国肾脏病学会、欧洲肾脏协会-欧洲透析和移植协会以及国际肾脏病学会联合工作组确定了十个广泛的伦理关注领域,作为需要协作行动的优先挑战。在这里,我们描述了这些挑战——获得肾衰竭护理的公平性、避免无效的透析、降低透析成本、肾衰竭护理中的共同决策、活体供者风险评估和决策、肾脏疾病预防和护理的优先事项设置、遗传肾脏疾病的伦理含义、倡导肾脏健康的责任以及管理利益冲突——旨在强调需要对特定问题进行伦理分析,以及开发工具和培训,以支持治疗肾脏疾病患者的临床医生在实践中做到合乎伦理,并为伦理决策做出贡献。

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Ethical challenges in nephrology: a call for action.肾脏病学中的伦理挑战:行动呼吁。
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Moral Distress in Nephrology: Perceived Barriers to Ethical Clinical Care.肾脏病学中的道德困境:感知到的伦理临床护理障碍。
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Shared decision-making in end-of-life care for end-stage renal disease patients: nephrologists' views and attitudes.终末期肾病患者生命末期关怀中的共同决策:肾科医生的观点和态度。
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Patient Perspectives on the Use of Aging Metrics for Kidney Transplant Decision-Making.

本文引用的文献

1
Moral Distress in Nephrology: Perceived Barriers to Ethical Clinical Care.肾脏病学中的道德困境:感知到的伦理临床护理障碍。
Am J Kidney Dis. 2020 Aug;76(2):248-254. doi: 10.1053/j.ajkd.2019.09.018. Epub 2019 Dec 19.
2
Personalizing the Kidney Transplant Decision: Who Doesn't Benefit from a Kidney Transplant?个性化肾移植决策:谁无法从肾移植中获益?
Clin J Am Soc Nephrol. 2020 Feb 7;15(2):279-281. doi: 10.2215/CJN.04090419. Epub 2019 Oct 1.
3
Improving Access to Kidney Transplantation: Business as Usual or New Ways of Doing Business?
患者对使用衰老指标进行肾脏移植决策的看法。
Prog Transplant. 2024 Sep;34(3):81-88. doi: 10.1177/15269248241268686. Epub 2024 Aug 6.
4
Ethical and Legal Aspects of Organ Donation and Transplantation.器官捐赠与移植的伦理及法律问题
Transpl Int. 2024 Apr 9;37:13011. doi: 10.3389/ti.2024.13011. eCollection 2024.
5
Views, attitudes, and reported practices of nephrology nurses regarding shared decision-making in end-of-life care.肾病护士对终末期护理中共同决策的看法、态度和报告做法。
Nurs Ethics. 2024 Aug;31(5):739-758. doi: 10.1177/09697330231200565. Epub 2023 Oct 4.
6
Ethical Implications of Chatbot Utilization in Nephrology.肾脏病学中聊天机器人应用的伦理问题
J Pers Med. 2023 Sep 8;13(9):1363. doi: 10.3390/jpm13091363.
7
Inequities in kidney health and kidney care.肾脏健康和肾脏护理方面的不平等。
Nat Rev Nephrol. 2023 Nov;19(11):694-708. doi: 10.1038/s41581-023-00745-6. Epub 2023 Aug 14.
8
Causes of futile care from the perspective of intensive care unit nurses (I.C.U): qualitative content analysis.从重症监护病房护士视角看无效治疗的原因:质性内容分析
BMC Nurs. 2022 Aug 12;21(1):225. doi: 10.1186/s12912-022-01004-y.
9
Patient Perspectives on the Use of Frailty, Cognitive Function, and Age in Kidney Transplant Evaluation.患者对在肾移植评估中使用虚弱、认知功能和年龄的看法。
AJOB Empir Bioeth. 2022 Oct-Dec;13(4):263-274. doi: 10.1080/23294515.2022.2090460. Epub 2022 Jul 8.
10
Addressing the Ethical Challenges of Providing Kidney Failure Care for Children: A Global Stance.应对儿童肾衰竭护理中的伦理挑战:全球立场
Front Pediatr. 2022 Mar 11;10:842783. doi: 10.3389/fped.2022.842783. eCollection 2022.
改善肾移植可及性:照常行事还是采用新的经营方式?
JAMA. 2019 Sep 10;322(10):931-933. doi: 10.1001/jama.2019.12784.
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The experiences and impact of being deemed ineligible for living kidney donation: Semi-structured interview study.被认为不符合活体肾脏捐赠资格的经历和影响:半结构化访谈研究。
Nephrology (Carlton). 2020 Apr;25(4):339-350. doi: 10.1111/nep.13628. Epub 2019 Jul 25.
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Living kidney donor and recipient perspectives on their relationship: longitudinal semi-structured interviews.供体和受体对其关系的看法:纵向半结构化访谈。
BMJ Open. 2019 Apr 4;9(4):e026629. doi: 10.1136/bmjopen-2018-026629.
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A new edition of the Declaration of Istanbul: updated guidance to combat organ trafficking and transplant tourism worldwide.《伊斯坦布尔宣言》新版:打击全球器官贩运和移植旅游的最新指南。
Kidney Int. 2019 Apr;95(4):757-759. doi: 10.1016/j.kint.2019.01.006.
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Increasing access to integrated ESKD care as part of universal health coverage.提高获得综合终末期肾病护理的机会,作为全民健康覆盖的一部分。
Kidney Int. 2019 Apr;95(4S):S1-S33. doi: 10.1016/j.kint.2018.12.005.
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Strengthening Global Efforts to Combat Organ Trafficking and Transplant Tourism: Implications of the 2018 Edition of the Declaration of Istanbul.加强全球打击器官贩运和移植旅游的努力:《伊斯坦布尔宣言》2018年版的影响
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Clin J Am Soc Nephrol. 2019 Apr 5;14(4):597-608. doi: 10.2215/CJN.11220918. Epub 2019 Mar 11.
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Financial risk protection at the bedside: How Ethiopian physicians try to minimize out-of-pocket health expenditures.床边的财务风险保护:埃塞俄比亚医生如何尽力减少自付医疗支出。
PLoS One. 2019 Feb 12;14(2):e0212129. doi: 10.1371/journal.pone.0212129. eCollection 2019.