Cartwright C, Steinberg M, Williams G, Najman J, Williams G
Department of Social and Preventive Medicine, University of Queensland.
Aust Crit Care. 1997 Sep;10(3):81-7. doi: 10.1016/s1036-7314(97)70405-3.
A major shift in the care of terminally ill people, due to advances in technology, and the development of legislation regarding patient self-determination and autonomy, has occurred over recent years. Critical care nurses (CCNs) are involved daily in issues of death and dying and are very aware of the needs, fears and psychosocial issues of patients and their families. Professional associations see a legitimate role for nurses in assisting the dying to achieve a dignified death. For legislation, policies and guidelines surrounding end-of-life issues to be effective, and to assist nursing staff with these sensitive, often difficult concerns, it is important that data on the opinions and perspectives of CCNs be objectively obtained. In a study by the Department of Social and Preventive Medicine at the University of Queensland, questionnaires were sent to 1100 randomly sampled community members and almost 1200 health professionals (nurses, general practitioners and specialists), including 299 CCNs. The response rate of CCNs to a 30-page postal questionnaire was 79 per cent (n = 231), indicating those nurses' high levels of interest in and/or concern regarding this area. CCNs supported the use of advance directives, the appointment of proxies and the need for doctors and nurses to give sufficient medication to relieve pain, even if this hastened the death of the patient. In addition, CCNs, more than any other professional group, supported the right of the terminally ill patient to physician-assisted suicide or euthanasia, their responses being very similar to those of community members. CCNs clearly face issues which, from legal, medical and ethical viewpoints, cause them concern. In sharing their personal experiences, CCNs stressed the need for more communication between doctors and patients, as well as between doctors and nurses. In addition, CCNs saw a clear role for themselves as advocates for patients/families in the decision-making process.
近年来,由于技术进步以及有关患者自我决定权和自主权的立法发展,绝症患者的护理发生了重大转变。重症监护护士(CCN)每天都要处理死亡和临终问题,并且非常了解患者及其家人的需求、恐惧和社会心理问题。专业协会认为护士在协助临终者尊严离世方面发挥着合理作用。为了使围绕临终问题的立法、政策和指导方针有效,并帮助护理人员处理这些敏感且通常棘手的问题,客观获取CCN的意见和观点数据非常重要。在昆士兰大学社会与预防医学系的一项研究中,向1100名随机抽样的社区成员以及近1200名卫生专业人员(护士、全科医生和专科医生)发放了问卷,其中包括299名CCN。CCN对一份30页的邮寄问卷的回复率为79%(n = 231),表明这些护士对该领域的高度关注和/或担忧。CCN支持使用预立医疗指示、指定代理人,以及医生和护士有必要给予足够的药物来缓解疼痛,即使这会加速患者死亡。此外,与其他任何专业群体相比,CCN更支持绝症患者接受医生协助自杀或安乐死的权利,他们的回答与社区成员的回答非常相似。CCN显然面临着从法律、医学和伦理角度引起他们关注的问题。在分享个人经历时,CCN强调医生与患者之间以及医生与护士之间需要更多沟通。此外,CCN认为自己在决策过程中作为患者/家属的倡导者有着明确的角色。