Di Lallo D, Miceli M, Perucci C A
Osservatorio Epidemiologico Regione Lazio, Roma.
Epidemiol Prev. 1997 Jul-Sep;21(3):194-201.
The study presents the methodology and selected results of the Lazio Dialysis Registry. The registry, begun in 1994, documents basic demographic data, minimal clinical information and vital status of all end-stage renal disease patients on dialysis treatment in Lazio region. At June 1994 the register included 2834 patients; during the next 12 months, 618 new patients had been notified. In one-year follow-up, among prevalent patients, 308 deaths and 90 renal transplants, and among new patients, 80 deaths and 9 renal transplants were observed. The mean age of the studied population was 59.6 (SD 15.1) for prevalent patients and 61.9 (SD 15.3) for new patients. Among prevalent patients 58.8% were males and 41.2% females, among new patients these figure were 62.1% and 37.9%, respectively. The prevalence rate was 55 per thousand population and the incidence rate was 12.0. The leading cause of renal failure was glomerulonephritis in prevalent patients (27.7%), among new patients the most representative group was nephropathies of unknown origin (27.0%). About 85% were on hemodialysis treatment, and about 4% on peritoneal dialysis. The cumulative survival rates during the one-year follow-up was 81.9%, among patients with age less than 65 years a better survival for males (94.9%) than females (90.1%) was observed. The results of the first year of activity show that a population-based registry of patients on chronic dialysis treatment can be an useful tool for service planning and epidemiological research.
本研究介绍了拉齐奥透析登记处的方法和部分研究结果。该登记始于1994年,记录了拉齐奥地区所有接受透析治疗的终末期肾病患者的基本人口统计学数据、最少临床信息和生命状态。1994年6月登记册中有2834名患者;在接下来的12个月里,新增了618名患者。在一年的随访中,在现患患者中观察到308例死亡和90例肾移植,在新患者中观察到80例死亡和9例肾移植。现患患者的研究人群平均年龄为59.6岁(标准差15.1),新患者为61.9岁(标准差15.3)。现患患者中男性占58.8%,女性占41.2%,新患者中这一比例分别为62.1%和37.9%。患病率为千分之55,发病率为12.0。现患患者中肾衰竭的主要原因是肾小球肾炎(27.7%),新患者中最具代表性的群体是病因不明的肾病(27.0%)。约85%的患者接受血液透析治疗,约4%接受腹膜透析。在一年的随访期间累积生存率为81.9%,在年龄小于65岁的患者中,观察到男性(94.9%)的生存率高于女性(90.1%)。第一年的活动结果表明基于人群的慢性透析治疗患者登记册可成为服务规划和流行病学研究的有用工具。