Dockerty J D, Becroft D M, Lewis M E, Williams S M
Department of Preventive and Social Medicine, University of Otago, Dunedin, New Zealand.
Cancer Causes Control. 1997 Nov;8(6):857-64. doi: 10.1023/a:1018412311997.
The New Zealand Cancer Registry (NZCR) is the main source of data on cancer incidence in New Zealand. The accuracy and completeness of registration of childhood cancers (ages zero to 14 years) were assessed during the conduct of a case-control study. Newly diagnosed children (1990-93) were ascertained from three sources: the NZCR; the Patient Management System (hospital admissions and discharges); and the separate Children's Cancer Registry. Pathology reviews were conducted to verify the diagnoses. Capture-recapture methods were used to assess the completeness of ascertainment. During the four-year period, 409 incident cases of childhood cancer were confirmed, giving an age-standardized incidence rate of 131 per million person-years (95 percent confidence interval = 119-144). The NZCR ascertained 395 (97 percent) of these children. In addition, the NZCR notified us of 43 other 'childhood cancer' registrations which were not confirmed as new cases of childhood cancer according to our eligibility criteria. The main reasons for these were coding errors (20 registrations), duplicates (seven), and a change in the pathological diagnosis as a result of the pathology review (seven). The capture-recapture estimate of the total number of incident cases was 410. Overall, the NZCR had good completeness for childhood cancers, but the number of unconfirmed registrations was larger than expected.
新西兰癌症登记处（NZCR）是新西兰癌症发病率数据的主要来源。在一项病例对照研究中，对儿童癌症（0至14岁）登记的准确性和完整性进行了评估。从三个来源确定了新诊断的儿童（1990 - 93年）：NZCR；患者管理系统（医院入院和出院记录）；以及单独的儿童癌症登记处。进行了病理复查以核实诊断。采用捕获再捕获方法评估确诊的完整性。在这四年期间，共确诊409例儿童癌症病例，年龄标准化发病率为每百万人年131例（95%置信区间 = 119 - 144）。NZCR确定了其中395例（97%）。此外，NZCR还向我们通报了另外43例“儿童癌症”登记，根据我们的纳入标准，这些未被确认为儿童癌症新病例。主要原因包括编码错误（20例登记）、重复（7例）以及病理复查导致病理诊断改变（7例）。捕获再捕获法估计的发病病例总数为410例。总体而言，NZCR对儿童癌症的登记完整性良好，但未确认登记的数量比预期的要多。
