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是否成为活体供体:针对接受肾移植儿童的父母的调查问卷。

To be or not to be a living donor: questionnaire to parents of children who have undergone renal transplantation.

作者信息

Kärrfelt H M, Berg U B, Lindblad F I, Tydén G E

机构信息

Department of Child and Adolescent Psychiatry, Karolinska Institute, Huddinge University Hospital, Sweden.

出版信息

Transplantation. 1998 Apr 15;65(7):915-8. doi: 10.1097/00007890-199804150-00009.

DOI:10.1097/00007890-199804150-00009
PMID:9565094
Abstract

BACKGROUND

Between 1981 and 1994, 67 transplantations were performed in 59 children below 16 years of age at Huddinge University Hospital. In most of the cases, one of the parents was the donor. The aim of this study was to evaluate how the transplantation influenced the parents.

METHODS

One hundred sixteen individual questionnaires were sent out to the donor parents and to the parents who for different reasons had not been donors. Of special interest was to investigate the emotional reactions, the social consequences, the relationship to the child, and the parents' attitudes toward donation.

RESULTS

Thirty-five donors and 41 nondonors replied. The majority of both donors and nondonors were satisfied with the medical information. The nondonors expressed more stress and anxiety before the transplantation. More than half of the donors experienced the operation as more painful than they had expected. Despite this fact, the nondonors showed significantly more psychosomatic/psychiatric symptoms than the donors after the operation. The donors reported an improved relation to the recipient child after the transplantation to a greater extent than the nondonors. Half of the donors reported an improved self-esteem after the donation. None of the donors regretted their donation and all of them would do the same again.

CONCLUSIONS

This study indicates that ethical and psychological risks in parental kidney donation should not be regarded as a major obstacle. However, irrespective of the parents being a donor or not, they wanted more psychosocial support both before, during, and after the transplantation.

摘要

背景

1981年至1994年间,胡丁厄大学医院为59名16岁以下儿童进行了67例移植手术。在大多数情况下,父母一方为供体。本研究的目的是评估移植手术对父母的影响。

方法

向供体父母以及因不同原因未成为供体的父母发放了116份个人问卷。特别感兴趣的是调查情绪反应、社会后果、与孩子的关系以及父母对捐赠的态度。

结果

35名供体和41名非供体进行了回复。大多数供体和非供体对医疗信息感到满意。非供体在移植前表现出更多的压力和焦虑。超过一半的供体认为手术比预期更痛苦。尽管如此,术后非供体出现的心身/精神症状明显多于供体。与非供体相比,供体报告移植后与受赠孩子的关系有更大程度的改善。一半的供体报告捐赠后自尊心有所提高。没有供体后悔自己的捐赠行为,所有人都表示愿意再次这样做。

结论

本研究表明,父母捐赠肾脏的伦理和心理风险不应被视为主要障碍。然而,无论父母是否为供体,他们在移植前、移植期间和移植后都希望获得更多的心理社会支持。

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Transplantation. 1998 Apr 15;65(7):915-8. doi: 10.1097/00007890-199804150-00009.
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