Wekre L L, Stanghelle J K, Lobben B, Oyhaugen S
Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway.
Spinal Cord. 1998 Apr;36(4):280-4. doi: 10.1038/sj.sc.3100557.
'The Norwegian Polio Study 1994' was performed to make a nation-wide survey of the medical and social situation, and of the needs of anterior poliomyelitis (polio). A questionnaire, consisting of 133 questions with sub-questions, was sent to a total of 2392 polio victims, most of them registered in 'The National Society of Polio Victims' in Norway. 1449 persons (61%) answered. Sixty-six per cent were between 45 and 64 years of age, 25% were above 64 years and 9% were under 45 years. When specifying new health problems, 85% stated that they had experienced increased weakness in muscles affected by polio, while 58% had experienced increased weakness in previous non-affected muscles. Other health problems related to polio were fatigue during exercise (80%), general fatigue (57%), joint pain (58%), muscular pain (58%) and cold intolerance (62%). The participants indicated an increasing need of aids, but 80% were still independent of help from others and 57% were still employed, fully or part time. Only 17% were satisfied with the public health services for polio survivors, while 67% of those who had undergone comprehensive examination at some central hospital were satisfied. This study indicates an obvious need of building up expertise in multidisciplinary evaluation and treatment of post polio problems in countries where acute polio has been eliminated.
开展“1994年挪威小儿麻痹症研究”是为了对医学和社会状况以及脊髓灰质炎（小儿麻痹症）患者的需求进行全国性调查。一份包含133个问题及子问题的问卷被发送给了总计2392名小儿麻痹症患者，其中大多数在挪威“全国小儿麻痹症患者协会”登记在册。1449人（61%）进行了回复。66%的人年龄在45至64岁之间，25%的人年龄在64岁以上，9%的人年龄在45岁以下。在明确新的健康问题时，85%的人表示他们受小儿麻痹症影响的肌肉出现了肌无力加重的情况，而58%的人表示之前未受影响的肌肉也出现了肌无力加重的情况。与小儿麻痹症相关的其他健康问题包括运动时疲劳（80%）、全身疲劳（57%）、关节疼痛（58%）、肌肉疼痛（58%）和不耐寒（62%）。参与者表示对辅助器具的需求日益增加，但80%的人仍然无需他人帮助，57%的人仍然全职或兼职工作。只有17%的人对脊髓灰质炎幸存者的公共卫生服务感到满意，而在某些中心医院接受过全面检查的人中，这一比例为67%。这项研究表明，在已消灭急性脊髓灰质炎的国家，明显需要培养多学科评估和治疗小儿麻痹症后遗症问题的专业技能。
