Hunter A G
Department of Genetics, Children's Hospital of Eastern Ontario, University of Ottawa, Canada.
Am J Med Genet. 1998 Jun 16;78(1):17-21.
This article examines marital adjustment of couples who have had a child with dwarfism due to a skeletal dysplasia, and of couples where one or both members are dwarfs. The instrument used was the Dyadic Adjustment Scale developed by Spanier [1976: Marriage Family 38:15-38]. The reasons for examining this psychosocial aspect of dwarfism were that the birth of a dwarfed child to average-size parents might be expected to cause stress in the relationship, and because several authors had raised concerns about the nature and/or quality of marriages involving dwarfs. This study provides evidence of a decrease in the level of marital adjustment for the average-size parents of affected children, gives tentative reassurance about marriages where both individuals are dwarfs, but raises some concerns about couples where only one member is a dwarf.
本文研究了因骨骼发育异常而育有侏儒症患儿的夫妇,以及一方或双方为侏儒症患者的夫妇的婚姻调适情况。所使用的工具是斯帕尼尔于1976年编制的《二元调适量表》(《婚姻与家庭》第38卷:第15 - 38页)。研究侏儒症这一社会心理层面的原因在于,身材正常的父母生育出侏儒症患儿可能会给夫妻关系带来压力,并且有几位作者对涉及侏儒症患者的婚姻性质和/或质量表示担忧。本研究表明,受影响儿童的身材正常的父母的婚姻调适水平有所下降,对双方均为侏儒症患者的婚姻给予了初步的肯定,但对只有一方是侏儒症患者的夫妇提出了一些担忧。