Schanberg L E, Keefe F J, Lefebvre J C, Kredich D W, Gil K M
Department of Pediatrics, Duke University Medical Center, Durham, North Carolina 27710, USA.
Clin J Pain. 1998 Jun;14(2):107-15. doi: 10.1097/00002508-199806000-00004.
The purpose of this study was to describe parental pain history and the family environment as it relates to the functional status of children with Juvenile Primary Fibromyalgia Syndrome (JPFS).
Twenty-nine parents of children with JPFS completed a pain history questionnaire, Von Korff Chronic Pain Grading system, and the Family Environment Scale (FES). Twenty-one adolescents with JPFS completed the FES, the Visual Analogue Scale for Pain, the modified Fibromyalgia Impact Questionnaire for Children, the Arthritis Impact Measurement Scales, and the Symptom Checklist-90-Revised. Correlational analyses were performed.
Parents of children with JPFS reported multiple chronic pain conditions, including but not limited to fibromyalgia. Parental pain history and the family environment correlated with the health status of adolescents with JPFS. Children with JPFS perceived the family environment as significantly more cohesive than did their parents. Greater incongruence between parent and child responses on the FES positively correlated with greater impairment.
These results suggest that family environment and parental pain history ày be related to how children cope with JPFS. Behavioral interventions targeting the family may improve the long-term functional status of children with JPFS.
本研究旨在描述青少年原发性纤维肌痛综合征（JPFS）患儿的父母疼痛史及家庭环境与患儿功能状态之间的关系。
29名JPFS患儿的父母完成了一份疼痛史问卷、冯·科尔夫慢性疼痛分级系统及家庭环境量表（FES）。21名患有JPFS的青少年完成了FES、视觉模拟疼痛量表、改良版儿童纤维肌痛影响问卷、关节炎影响测量量表及症状自评量表90修订版。进行了相关性分析。
JPFS患儿的父母报告了多种慢性疼痛状况，包括但不限于纤维肌痛。父母的疼痛史及家庭环境与患有JPFS的青少年的健康状况相关。患有JPFS的儿童认为家庭环境比其父母所认为的更具凝聚力。父母与孩子在FES上的反应差异越大，功能损害越严重。
这些结果表明，家庭环境和父母疼痛史可能与儿童应对JPFS的方式有关。针对家庭的行为干预可能会改善JPFS患儿的长期功能状态。
