Zickler C F, Morrow J D, Bull M J
Ann Whitehill Down Syndrome Program, James Whitcomb Riley Hospital for Children in Indianapolis, Indiana, USA.
J Pediatr Health Care. 1998 May-Jun;12(3):111-7. doi: 10.1016/s0891-5245(98)90240-1.
This research describes temperament characteristics of infants with Down syndrome who are 1 to 4 months old. In the literature children with Down syndrome have been stereotyped. It was hypothesized that temperament characteristics may be evident and unique in newborns with Down syndrome.
A standardized questionnaire, The Early Infancy Temperament Questionnaire, a cover letter, informed consent forms, and a brief explanation of the project were given to families with a newborn infant with Down syndrome. Thirty-two (families with infants with Down syndrome completed the study.
Mean scores indicate that infants with Down syndrome are rated more active, less intense, more distractible, and have a tendency to demonstrate more approach behaviors compared with normally developing infants. Data suggest infants with Down syndrome have some unique characteristics but are more like their normally developing peers than different.
Integration and mainstreaming of infants and children with Down syndrome emphasizes the need for nurse practitioners to appreciate the temperament characteristics of these infants.
本研究描述了1至4个月大的唐氏综合征婴儿的气质特征。在文献中,唐氏综合征患儿一直存在刻板印象。据推测,唐氏综合征新生儿的气质特征可能很明显且独特。
向患有唐氏综合征新生儿的家庭发放一份标准化问卷《早期婴儿气质问卷》、一封附函、知情同意书以及对该项目的简要说明。32个患有唐氏综合征婴儿的家庭完成了这项研究。
平均得分表明,与正常发育的婴儿相比,唐氏综合征婴儿被评定为更活跃、强度更低、更容易分散注意力,并且更倾向于表现出更多的趋近行为。数据表明,唐氏综合征婴儿有一些独特的特征,但与其正常发育的同龄人更相似而非不同。
唐氏综合征婴幼儿的融合与主流化强调执业护士需要了解这些婴儿的气质特征。