Phinney A
Department of Physiological Nursing, University of California, San Francisco, USA.
J Gerontol Nurs. 1998 Jun;24(6):8-15. doi: 10.3928/0098-9134-19980601-06.
This study describes the illness experience of dementia from the patient's perspective. Five people with Alzheimer's disease and their spouses were interviewed and observed during home visits. Thematic analysis revealed two themes: being unsure and trying to be normal. Being unsure describes people's fluctuating experience of symptoms that leaves them feeling unsure of themselves in a world that is increasingly unfamiliar. Trying to be normal describes people's efforts to counter the impact of dementia to maintain continuity in their lives. These findings point to the importance of taking into account the patient's perspective to better understand the experience of living with dementia and develop improved treatment and care practices.
本研究从患者角度描述了痴呆症患者的患病经历。对五名阿尔茨海默病患者及其配偶进行了家访访谈和观察。主题分析揭示了两个主题：不确定感和努力表现正常。不确定感描述了人们症状波动的经历，这让他们在一个日益陌生的世界中对自己感到不确定。努力表现正常描述了人们为应对痴呆症的影响以维持生活连续性所做的努力。这些发现表明，考虑患者的观点对于更好地理解痴呆症患者的生活经历以及制定改进的治疗和护理方法至关重要。
