Chamberlayne R, Green B, Barer M L, Hertzman C, Lawrence W J, Sheps S B
Centre for Health Services and Policy Research, University of British Columbia, Vancouver.
Can J Public Health. 1998 Jul-Aug;89(4):270-3. doi: 10.1007/BF03403934.
As the availability of both health utilization and outcome information becomes increasingly important to health care researchers and policy makers, the ability to link person-specific health data becomes a critical objective. The integration of population-based administrative health databases has been realized in British Columbia by constructing an historical file of all persons registered with the health care system, and by probabilistically linking various program files to this 'coordinating' file. The linkages have achieved a high rate of success in matching service events to person-specific registration records. This success has allowed research projects to be proposed which would otherwise not have been feasible, and has initiated the development of policies and procedures regarding research access to linked data. These policies and procedures include a framework for addressing the ethical issues surrounding data linkage. With continued attention to confidentiality issues, these linked data present a valuable resource for health services research and planning.
随着健康利用和结果信息对于医疗保健研究人员和政策制定者变得越来越重要，链接个人特定健康数据的能力成为一个关键目标。在不列颠哥伦比亚省，通过构建医疗保健系统中所有注册人员的历史文件，并将各种项目文件概率性地链接到这个“协调”文件，实现了基于人群的行政健康数据库的整合。这些链接在将服务事件与个人特定注册记录匹配方面取得了很高的成功率。这一成功使得原本不可行的研究项目得以提出，并启动了关于研究访问链接数据的政策和程序的制定。这些政策和程序包括一个解决围绕数据链接的伦理问题的框架。随着对保密问题的持续关注，这些链接数据为健康服务研究和规划提供了宝贵资源。
