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自主性悖论:预测性基因检测与自主性:三个基本问题

The autonomy paradox: predictive genetic testing and autonomy: three essential problems.

作者信息

Huibers A K, van 't Spijker A

机构信息

Center for Bioethics and Health Law at Utrecht University, The Netherlands.

出版信息

Patient Educ Couns. 1998 Sep;35(1):53-62. doi: 10.1016/s0738-3991(98)00083-4.

Abstract

The development of genetics creates the possibility to acquire more and more information concerning our genetic constitution. In general this is considered as a contribution to the autonomy of patients and others. In this article it is pointed out that the relation between genetic information and autonomy is far from simple. The autonomy of people may even be threatened by genetic information. Counsellors should therefore be very careful in offering the opportunity of genetic testing; a general policy of restraint would be advisable. And when offering information, several considerations should be kept in mind in order to avoid doing more harm than good in the counseling process.

摘要

遗传学的发展使得获取越来越多关于我们基因构成的信息成为可能。一般来说,这被视为对患者及其他人自主性的一种贡献。但本文指出,基因信息与自主性之间的关系远非如此简单。人们的自主性甚至可能受到基因信息的威胁。因此,咨询人员在提供基因检测机会时应格外谨慎;采取普遍的克制政策是可取的。而且在提供信息时,应牢记若干注意事项,以免在咨询过程中弊大于利。

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