Rössler W, Salize J, Knapp M
Psychiatrische Universitätsklinik Zürich.
Fortschr Neurol Psychiatr. 1998 Nov;66(11):496-504. doi: 10.1055/s-2007-995290.
Schizophrenia is regarded as the most expensive mental illness because of its specific symptoms and characteristics (e.g. early onset, often chronic course, high rates of readmission to hospital treatment, high rate of disabilities and extensive rehabilitative interventions), which prove to be extremely costly. Despite this, studies on the financial aspects of schizophrenia or the provision of care for schizophrenic patients has become an issue of psychiatric research only since the beginning of the reform of mental healthcare. Early cost studies had been conducted in the United States (US) during the fifties. Since then, they have grown in number not only in the US and in Great Britain, but also on the Continent of Europe. On an international level, comprehensive literature concerning methodology has attempted to establish cost studies as an integral part of mental health services research. Germany, however, is far behind international developments. Although the fundamental lack of empirical data on costs both in psychiatry as a whole and in schizophrenia had already been ascertained in a large national survey called "Psychiatrie-Enquête" in the mid-seventies, little has changed since then. One reason for these possibly great methodological problems is associated with the assessment of cost data in fragmented community mental health care networks, which in Germany include the additional obstacle--unlike abroad--of non-availability of access to data from case registers. Psychiatric case registers are not permitted in Germany because of very strict data protection laws. Despite the problems in methodology, there is an urgent need in Germany to remedy the lack of cost data for schizophrenic-patient care. The pressure of curbing costs in health care will probably force the German mental health care services to provide detailed cost data with regular reports in the future.
精神分裂症被认为是最昂贵的精神疾病,因为其具有特定的症状和特征(如发病早、病程往往呈慢性、再次入院接受治疗的比例高、残疾率高以及广泛的康复干预措施),这些都被证明成本极高。尽管如此,对精神分裂症的财务方面或为精神分裂症患者提供护理的研究,直到精神卫生保健改革开始后才成为精神病学研究的一个问题。早期的成本研究于五十年代在美国进行。从那时起,此类研究不仅在美国和英国数量有所增加,在欧洲大陆也同样如此。在国际层面,有关方法学的综合文献试图将成本研究确立为精神卫生服务研究的一个组成部分。然而,德国远远落后于国际发展水平。尽管在七十年代中期一项名为“精神病学调查”的大型全国性调查中就已确定,整个精神病学领域以及精神分裂症方面在成本实证数据上基本缺失,但从那时起几乎没有什么变化。这些可能存在的巨大方法学问题的一个原因与碎片化的社区精神卫生保健网络中的成本数据评估有关,在德国,这还存在一个额外的障碍——与国外不同——无法获取病例登记数据。由于非常严格的数据保护法,德国不允许设立精神病病例登记。尽管存在方法学上的问题,但德国迫切需要弥补精神分裂症患者护理成本数据的缺失。医疗保健领域控制成本的压力可能会迫使德国精神卫生保健服务机构在未来定期报告中提供详细的成本数据。