Stein R E
Albert Einstein College of Medicine/Montefiore Medical Center, Bronx, New York 10467, USA.
J Urban Health. 1998 Dec;75(4):732-8. doi: 10.1007/BF02344503.
The care of children who have chronic conditions should focus on improving the lives of the children and their families. This is accomplished most effectively through community-based, family-centered care. Critical issues for these children and families in entering the next century include the level of insurance, content of benefits package, level of evidence required for health insurance reimbursement, preparation of and incentives for health care professionals, roles being demanded of families. As the richest country in the world, we should be able to (1) provide universal coverage, (2) guarantee a comprehensive benefits package that applies a child-specific standard of medical necessity, (3) establish criteria for requiring insurers to reimburse for new effective therapies, (4) develop strategies for overcoming professional barriers, and (5) create mechanisms for compensating family caretakers for their care.
对患有慢性病儿童的护理应着重于改善儿童及其家庭的生活。这最有效地通过以社区为基础、以家庭为中心的护理来实现。这些儿童及其家庭进入下个世纪面临的关键问题包括保险水平、福利套餐内容、医疗保险报销所需的证据水平、医护专业人员的准备情况和激励措施、对家庭的要求等。作为世界上最富有的国家，我们应该能够：（1）提供全民医保；（2）保证提供适用儿童特定医疗必要性标准的综合福利套餐；（3）制定要求保险公司为新的有效疗法报销费用的标准；（4）制定克服专业障碍的策略；（5）建立机制对家庭护理人员的护理给予补偿。
