Petit de Mange E A
Department of Nursing, West Chester University, Pennsylvania, USA.
Crit Care Nurs Clin North Am. 1998 Sep;10(3):339-46.
"If I had known beforehand how difficult, demanding, time consuming, and exhausting it would be--having my child home on a ventilator--I would never have agreed to bring her home" (personal communication with a parent, 1994). This mother's statement strikes at the heart of pediatric high-tech homecare. Parents assume caregiver roles that professional health providers have taken years to develop. Nurses, as strangers, intrude into intimate family relationships that have cultivated over years. Pioneering agencies attempt to fill a gap in pediatric care using guidelines that have been entrenched in the medical and economic models for years. The multiple dimensions of high-tech pediatric homecare require more than provision of technical nursing services. In homecare, nurses are challenged by cultural differences, language barriers, loss of control, family dynamics, practicing in unfamiliar environments, and new technology. To ensure quality nursing care, all professional dimensions need to be considered to be of equal importance.
“要是我事先就知道让孩子靠呼吸机在家生活会如此艰难、要求苛刻、耗费时间且令人疲惫,我绝不会同意把她接回家。”(1994年与一位家长的私人交流)这位母亲的话直击儿科高科技家庭护理的核心。家长承担起了专业医护人员历经数年才得以发展起来的照顾者角色。护士作为陌生人,闯入了多年来形成的亲密家庭关系之中。开拓性机构试图依据多年来已根深蒂固于医疗和经济模式的指导方针来填补儿科护理的空白。高科技儿科家庭护理的多个层面需要的不仅仅是提供技术性护理服务。在家庭护理中,护士面临着文化差异、语言障碍、失去控制权、家庭动态、在陌生环境中执业以及新技术等挑战。为确保优质护理,所有专业层面都应被视为同等重要。