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葡萄酒色斑患者的心理社会压力及对染料激光治疗的期望

Psychosocial stress of patients with port wine stains and expectations of dye laser treatment.

作者信息

Augustin M, Zschocke I, Wiek K, Peschen M, Vanscheidt W

机构信息

Department of Dermatology, University Hospital of Freiburg, Germany.

出版信息

Dermatology. 1998;197(4):353-60. doi: 10.1159/000018031.

Abstract

BACKGROUND

Port wine stains can be treated successfully with the dye laser in most cases. The indication for treatment is made on the basis of the emotional stress arising from the port wine stain. Studies of the extent of psychosocial stress to date have led to contradictory results.

OBJECTIVE

To address the question how many patients with port wine stain suffer psychosocial stress and how this group can further be characterized. Moreover, the specific expectations of treatment were to be elucidated.

METHODS

During dye laser treatment, 76 patients with port wine stains were evaluated by questionnaires regarding (a) emotional well-being, (b) quality of life, (c) body perception and (d) disease-specific stress and expectations of therapy.

RESULTS

Patients with port wine stains showed significantly higher emotional stress than healthy controls. They were particularly impaired in quality of life with respect to their social life and felt less attractive than a healthy control group. Patients with high emotional stress placed high hopes on the laser therapy with regard to chances of employment and social contacts.

CONCLUSION

The data point to the need for thorough patient consultation prior to laser therapy in order to avoid excessive expectations. Psychological consultation is recommended for emotionally labile PWS patients.

摘要

背景

大多数情况下,葡萄酒色斑可用染料激光成功治疗。治疗指征基于葡萄酒色斑所引起的情绪压力来确定。迄今为止,关于心理社会压力程度的研究得出了相互矛盾的结果。

目的

探讨有多少葡萄酒色斑患者遭受心理社会压力,以及如何进一步对该群体进行特征描述。此外,还要阐明对治疗的具体期望。

方法

在染料激光治疗期间,通过问卷调查对76例葡萄酒色斑患者进行评估,内容包括(a)情绪健康状况、(b)生活质量、(c)身体认知以及(d)疾病特异性压力和对治疗的期望。

结果

葡萄酒色斑患者的情绪压力明显高于健康对照组。他们在社会生活方面的生活质量尤其受到损害,并且比健康对照组感觉自己的吸引力更低。情绪压力高的患者对激光治疗在就业机会和社会交往方面寄予厚望。

结论

数据表明,在激光治疗前需要对患者进行全面咨询,以避免过高期望。建议对情绪不稳定的葡萄酒色斑患者进行心理咨询。

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