• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

葡萄酒色斑患者的心理社会压力及对染料激光治疗的期望

Psychosocial stress of patients with port wine stains and expectations of dye laser treatment.

作者信息

Augustin M, Zschocke I, Wiek K, Peschen M, Vanscheidt W

机构信息

Department of Dermatology, University Hospital of Freiburg, Germany.

出版信息

Dermatology. 1998;197(4):353-60. doi: 10.1159/000018031.

DOI:10.1159/000018031
PMID:9873174
Abstract

BACKGROUND

Port wine stains can be treated successfully with the dye laser in most cases. The indication for treatment is made on the basis of the emotional stress arising from the port wine stain. Studies of the extent of psychosocial stress to date have led to contradictory results.

OBJECTIVE

To address the question how many patients with port wine stain suffer psychosocial stress and how this group can further be characterized. Moreover, the specific expectations of treatment were to be elucidated.

METHODS

During dye laser treatment, 76 patients with port wine stains were evaluated by questionnaires regarding (a) emotional well-being, (b) quality of life, (c) body perception and (d) disease-specific stress and expectations of therapy.

RESULTS

Patients with port wine stains showed significantly higher emotional stress than healthy controls. They were particularly impaired in quality of life with respect to their social life and felt less attractive than a healthy control group. Patients with high emotional stress placed high hopes on the laser therapy with regard to chances of employment and social contacts.

CONCLUSION

The data point to the need for thorough patient consultation prior to laser therapy in order to avoid excessive expectations. Psychological consultation is recommended for emotionally labile PWS patients.

摘要

背景

大多数情况下,葡萄酒色斑可用染料激光成功治疗。治疗指征基于葡萄酒色斑所引起的情绪压力来确定。迄今为止,关于心理社会压力程度的研究得出了相互矛盾的结果。

目的

探讨有多少葡萄酒色斑患者遭受心理社会压力,以及如何进一步对该群体进行特征描述。此外,还要阐明对治疗的具体期望。

方法

在染料激光治疗期间,通过问卷调查对76例葡萄酒色斑患者进行评估,内容包括(a)情绪健康状况、(b)生活质量、(c)身体认知以及(d)疾病特异性压力和对治疗的期望。

结果

葡萄酒色斑患者的情绪压力明显高于健康对照组。他们在社会生活方面的生活质量尤其受到损害,并且比健康对照组感觉自己的吸引力更低。情绪压力高的患者对激光治疗在就业机会和社会交往方面寄予厚望。

结论

数据表明,在激光治疗前需要对患者进行全面咨询,以避免过高期望。建议对情绪不稳定的葡萄酒色斑患者进行心理咨询。

相似文献

1
Psychosocial stress of patients with port wine stains and expectations of dye laser treatment.葡萄酒色斑患者的心理社会压力及对染料激光治疗的期望
Dermatology. 1998;197(4):353-60. doi: 10.1159/000018031.
2
[Coping with illness and quality of life of patients with port-wine stains treated with laser therapy].[应对接受激光治疗的葡萄酒色斑患者的疾病及生活质量]
Hautarzt. 1998 Sep;49(9):714-8. doi: 10.1007/s001050050814.
3
Patients with port-wine stains and their psychosocial reactions after photothermolytic treatment.
Dermatol Surg. 2000 Mar;26(3):190-6. doi: 10.1046/j.1524-4725.2000.09204.x.
4
Acquired port wine stains: clinical and psychological assessment and response to pulsed dye laser therapy.
Br J Dermatol. 1997 Jul;137(1):86-90.
5
Potential psychological benefits from early treatment of port-wine stains in children.儿童葡萄酒色斑早期治疗的潜在心理益处。
Br J Dermatol. 1998 Jul;139(1):59-65. doi: 10.1046/j.1365-2133.1998.02314.x.
6
Long-term psychological impact and perceived efficacy of pulsed-dye laser therapy for patients with port-wine stains.脉冲染料激光治疗鲜红斑痣患者的长期心理影响及感知疗效
Dermatol Surg. 2003 Jan;29(1):49-55. doi: 10.1046/j.1524-4725.2003.29010.x.
7
The medical necessity for treatment of port-wine stains.
Dermatol Surg. 1997 Aug;23(8):663-7. doi: 10.1111/j.1524-4725.1997.tb00386.x.
8
Effect of the timing of treatment of port-wine stains with the flash-lamp-pumped pulsed-dye laser.闪光灯泵浦脉冲染料激光治疗葡萄酒色斑的治疗时机效果
N Engl J Med. 1998 Apr 9;338(15):1028-33. doi: 10.1056/NEJM199804093381504.
9
Quality of life in adults with facial port-wine stains.患有面部葡萄酒色斑的成年人的生活质量。
J Am Acad Dermatol. 2017 Apr;76(4):695-702. doi: 10.1016/j.jaad.2016.10.039. Epub 2016 Dec 9.
10
Redarkening of port-wine stains 10 years after pulsed-dye-laser treatment.脉冲染料激光治疗10年后葡萄酒色斑再次变黑
N Engl J Med. 2007 Mar 22;356(12):1235-40. doi: 10.1056/NEJMoa064329.

引用本文的文献

1
A Study on the Current Situation of Stigma and Its Influencing Factors Among Chinese Patients with Port-Wine Stains.中国葡萄酒色斑患者的耻辱感现状及其影响因素研究
Clin Cosmet Investig Dermatol. 2025 May 26;18:1297-1308. doi: 10.2147/CCID.S513914. eCollection 2025.
2
Trauma and Disfigurement: Psychosocial Impact and Ethical Reflections on esthetic Normalization in Medicine.创伤与毁容:医学中美化归一的社会心理影响及伦理思考
Linacre Q. 2025 May 21:00243639251334426. doi: 10.1177/00243639251334426.
3
Psychosocial implications of rare genetic skin diseases affecting appearance on daily life experiences, emotional state, self-perception and quality of life in adults: a systematic review.
罕见遗传性皮肤疾病对成年人日常生活体验、情绪状态、自我认知和生活质量的心理社会影响:系统评价。
Orphanet J Rare Dis. 2023 Feb 23;18(1):39. doi: 10.1186/s13023-023-02629-1.
4
Quality of Life and Psychological Effects of Port-Wine Stain: A Review of Literature.葡萄酒色斑的生活质量与心理影响:文献综述
Clin Cosmet Investig Dermatol. 2021 Jun 22;14:681-690. doi: 10.2147/CCID.S315804. eCollection 2021.
5
Treatment Outcome Measurement Instruments for Port Wine Stains: A Systematic Review of Their Measurement Properties.鲜红斑痣治疗结局测评工具:测评性能的系统评价。
Dermatology. 2021;237(3):416-432. doi: 10.1159/000511438. Epub 2020 Dec 3.
6
Societal-Perceived Health Utility of Hypertrophic Facial Port-Wine Stain and Laser Treatment.肥厚性面部葡萄酒色斑及激光治疗的社会认知健康效用
Facial Plast Surg Aesthet Med. 2020 Apr 22;22(5):327-35. doi: 10.1089/fpsam.2020.0059.
7
Pulsed Dye Laser Treatment of Port-Wine Stains in Infancy Without the Need for General Anesthesia.脉冲染料激光治疗婴儿期葡萄酒色斑,无需全身麻醉。
JAMA Dermatol. 2019 Apr 1;155(4):435-441. doi: 10.1001/jamadermatol.2018.5249.
8
Extracranial vascular malformations (hemangiomas and vascular malformations) in children and adolescents - diagnosis, clinic, and therapy.儿童和青少年的颅外血管畸形(血管瘤和血管畸形)——诊断、临床及治疗
GMS Curr Top Otorhinolaryngol Head Neck Surg. 2014 Dec 1;13:Doc02. doi: 10.3205/cto000105. eCollection 2014.
9
Use of reflectance spectrophotometry to predict the response of port wine stains to pulsed dye laser.使用反射分光光度法预测葡萄酒色斑对脉冲染料激光的反应。
Lasers Med Sci. 2014 Jan;29(1):225-30. doi: 10.1007/s10103-013-1317-2. Epub 2013 Apr 23.