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有和没有小儿麻痹后遗症的既往小儿麻痹症患者的残疾与功能评估

Disability and functional assessment in former polio patients with and without postpolio syndrome.

作者信息

Nollet F, Beelen A, Prins M H, de Visser M, Sargeant A J, Lankhorst G J, de Jong B A

机构信息

Department of Rehabilitation Medicine, Academic Medical Center, University of Amsterdam, The Netherlands.

出版信息

Arch Phys Med Rehabil. 1999 Feb;80(2):136-43. doi: 10.1016/s0003-9993(99)90110-7.

DOI:10.1016/s0003-9993(99)90110-7
PMID:10025486
Abstract

OBJECTIVES

To compare perceived health problems and disability in former polio subjects with postpolio syndrome (PPS) and those without postpolio syndrome (non-PPS), and to evaluate perceived health problems, disability, physical performance, and muscle strength.

DESIGN

Cross-sectional survey; partially blinded data collection.

SUBJECTS

One hundred three former polio subjects, aged 32 to 60yrs. This volunteer sample came from referrals and patient contacts. Criterion for PPS: new muscle weakness among symptoms.

MAIN OUTCOME MEASURES

Nottingham Health Profile (NHP), adapted D-code of the International Classification of Impairments, Disabilities and Handicaps, performance test, and muscle strength assessment.

RESULTS

PPS subjects (n = 76) showed higher scores (p < .001) than non-PPS subjects (n = 27) within the NHP categories of physical mobility, energy, and pain. On a 16-item Polio Problems List, 78% of PPS subjects selected fatigue as their major problem, followed by walking outdoors (46%) and climbing stairs (41%). The disabilities of PPS subjects were mainly seen in physical and social functioning. No differences in manually tested strength were found between patient groups. PPS subjects needed significantly more time for the performance test than non-PPS subjects and their perceived exertion was higher. Perceived health problems (NHP-PhysMobility) correlated significantly with physical disability (r = .66), performance-time (r = .54), and muscle strength (r = .38). With linear regression analysis, 54% of the NHP-PhysMobility score could be explained by the performance test (time and exertion), presence of PPS, and muscle strength, whereas strength itself explained only 14% of the NHP-PhysMobility score.

CONCLUSIONS

PPS subjects are more prone to fatigue and have more physical mobility problems than non-PPS subjects. In former polio patients, measurements of perceived health problems and performance tests are the most appropriate instruments for functional evaluation.

摘要

目的

比较患有小儿麻痹后遗症(PPS)的既往小儿麻痹症患者与未患小儿麻痹后遗症(非PPS)的患者所感知到的健康问题和残疾情况,并评估所感知到的健康问题、残疾、身体机能及肌肉力量。

设计

横断面调查;部分盲法数据收集。

研究对象

103名年龄在32至60岁之间的既往小儿麻痹症患者。该志愿者样本来自转诊和患者联系。PPS的标准:症状中出现新的肌肉无力。

主要观察指标

诺丁汉健康量表(NHP)、国际损伤、残疾和障碍分类的适应性D编码、机能测试和肌肉力量评估。

结果

在NHP的身体活动能力、精力和疼痛类别中,PPS患者(n = 76)的得分高于非PPS患者(n = 27)(p < .001)。在一份16项的小儿麻痹问题清单上,78%的PPS患者选择疲劳作为他们的主要问题,其次是户外行走(46%)和爬楼梯(41%)。PPS患者的残疾主要体现在身体和社会功能方面。两组患者在手动测试的力量方面未发现差异。PPS患者在机能测试中所需时间明显多于非PPS患者,且他们所感知到的用力程度更高。所感知到的健康问题(NHP-身体活动能力)与身体残疾(r = .66)、机能测试时间(r = .54)和肌肉力量(r = .38)显著相关。通过线性回归分析,NHP-身体活动能力得分的54%可由机能测试(时间和用力程度)、PPS的存在以及肌肉力量来解释,而力量本身仅解释了NHP-身体活动能力得分的14%。

结论

与非PPS患者相比,PPS患者更容易疲劳且有更多的身体活动能力问题。在既往小儿麻痹症患者中,所感知到的健康问题测量和机能测试是功能评估的最合适工具。

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